Hello lovely people. I’ve just stumbled onto this forum and feel it’s more appropriate and relevant to me. I went to the GP just after bank holiday weekend in August after I noticed nipple discharge. I was seen in BCU 2 weeks later (mid September) and my world came crashing down when I was told it was definitely cancer, to leave the next Wednesday free to discuss biopsy results and treatment plan. Well one week later I was told - IDC low grade erpositive pr positive awaiting her2 result and that it was 19mm. Initial plan was lumpectomy and possibly radiotherapy.
A few days later I got a call to attend for another biopsy, which left me really worried. When I asked why, I was told they wanted to check calcifications on either side of the lump which made sense.
I attended on 5th October for a vacuum assisted biopsy. It was a horrendous experience! Left me sore and swollen for several days. I returned on 13th to get the results. Apparently one sample was benign and the other was normal but they were not happy with the result. I was told MDT want to do an MRI now. When I asked why, I didn’t really get a clear answer except that they are just being cautious!
I’d also read the letter they sent to the GP detailing provisional diagnosis which states the size as 55mm! I asked why they told me something different and the consultant tried to explain by saying there were 2 other areas of concern and when added together would add up to 55mm which is even more worrying because if that is the case the original treatment plan/diagnosis is not accurate.
The MRI is booked for the 20th however the results will take a couple of weeks to come back which means my surgery will have to be pushed back, and I still don’t have clarity on my diagnosis.
I feel angry at life. I am angry at the system. I am terrified, not knowing what the future holds… sometimes I feel like “I ve got this” and other times I feel so overwhelmed!
