Feeling Very Lost....and angry!

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Hello everyone.

On Monday, I was told I have breast cancer. I've had 7 days now knowing I have cancer. Its a mental and surreal feeling. I did a lot of crying on Monday. But from Tuesday to now I've been weirdly ok.  I went back to work on Wednesday. Been doing the Tesco food shop. Just acting like Monday never happened. I think I did a lot of my getting upset during the 10 days between biopsy and results. Anyway, today I'm feeling angry. Really f**king angry. I think thats because I feel lost. I have no idea what's going on. On Monday I was just told breast cancer, and I'd need a CT and PET scan to see if its spread then when they have the scan results they can give me a treatment plan. Also, they said my HER2 results should be back by then too. Tuesday my breast care nurse called to check in with me. I asked her what type of breast cancer it was. She didn't know but said she would look at my path report and call me on Thursday. She called Thursday, said she hadn't managed to access my records so didn't know what type of breast cancer. She also didn't know when my scans would be, all she could say was they've been requested. 

I know things don't happen instantly but I just feel like I've been given this bombshell diagnosis and sent home to carry on as normal. No idea when I'm seeing a doctor again, when my scans are, what type of cancer I have, what treatment will be, when it will start etc etc. I know I probably sound like an impatient moaning minnie, but I'm just really annoyed and pissed off today. I've been fine, calm and collected up until now. 

Sorry to moan but I need a sounding post, and it seems that today this is it.

Laura xx

  • So still no plan. They spotted something on my liver (nothing to worry about) they said. So an ultra sound on Friday and more biopsies done at the same time as a mammogram to come (could be two weeks before it even happens). Started Tamoxifen today. Which is giving me the fear. So I ran up a hill and had a cry in the lovely long swishy grass. One day at a time x

  • How quickly did you know tamoxifen was not going to work for you? X

  • On other threads I've heard that the brand has a lot to answer for due to the fillers/extras they put in. Make a note of symptoms but try and talk to pharmacist to see what brand they have and could get hold of. I was very apprehensive about tablets (mainly cos I have an issue swallowing tablets) and although the side effects are minimal, I do get swolen ankles, joint pain and the odd day like today of feeling sick/nauseous.it seems others have got worse and there are plenty threads if you search for tamoxifen. As someone else commented, its a shame they don't mention more of the side effects. Most of us are on tablets for 5 years, some for ten. That's a long time.

    Keep going ...one day at a time xx

  • One day at a time indeed my lovely. Hope that swishy grass hugged you a bit too. 

    A very close work colleague of mine went through breast cancer 20 years ago. She asked me if I knew what medication I was being given (which is a no as I don't know any treatment plan yet) and said she was on tamoxifen but it made her feel really ill. To the point she refused to take it. However, some of the friends she made whilst on chemo took it and were OK. When she refused to take it anymore they offered her a different brand that suited her better. She was told that tamoxifen is one of the cheapest drugs so they use that the most, but there are others available. I'm not sure how true that statement is, but I'm clinging to the part where if I'm given a drug that makes me poorly, then there could be a different one that suits me better. 

    I hate focusing on the negatives and wish I could give you both a big happy healing vibe hug. When shit things are happening, we don't want more bad landing on our laps. Wouldn't it be great if these medicines tasted like a cold g&t and put a spring in our step and a rose to our cheeks.

    • Sending lots of love ladies xxxx
  • I’ve only been taking it for 2 weeks but I have the worst nausea and so exhausted every day. I have tried different anti emetics. Gp gave me 8mg ondansetron sublingual tabs today to try Fingers crossed have apt next week with oncologist to discuss