In shock & feeling very lost

  • 20 replies
  • 17 subscribers
  • 3943 views

Morning everyone, 

firstly, it’s great to have found this support - thanks to each & everyone of you, I already feel less alone. 

im 42 & just got diagnosed on Tuesday. All the terminology baffling me right now. A lot to take in & the tears keep coming. Then I feel so silly for being all ‘me me me’ and try to remember to be kind to myself but it all feels too much sometimes. Fear is filling my every waking moment. I have a bone & ct scan next week to check if spread. I fear needles & hospitals (ha well I know no one loves them!) but knowing chemotherapy & surgery will have to happen is too much to think about. 

apologies for this somber message. I do hope to find laughter & hope again soon! 

  • FormerMember
    FormerMember in reply to PinkLady2021

    Sent the link through, let me know if you get it ok. Be encouraged BlushRofl

  • FormerMember
    FormerMember in reply to PinkLady2021

    Will be rooting for u x

  • FormerMember
    FormerMember in reply to FormerMember

    Did you get the link ok for my YouTube journey? 

  • Yes thanks. Just watched. So encouraging & thank goodness you & your family got through covid too. 

  • Just wanted to send you a message of support.

    I'm also 42, got diagnosed in late November with stage 3 Triple-negative breast cancer and have had 3 rounds of chemo so far. 

    Due to have my 4th round of chemo on Wednesday. 

    Everything is overwhelming at the start. All of the terminology is mind-boggling. My breast care nurse has been fantastic and has helped me so much in understanding what I need to do or understand. 

    Definitely allow yourself to cry. You need to. 

    Everyone I've been in contact with has been so kind. 

    There is so much information out there it can be very confusing. 

    Any questions happy to chat and sending you all the support xxx

  • Hey Raw. Thanks for your message. I'm not on here too much hence the delay! I had my 1st chemo yesterday & I'm feeling ok. How's your chemo going? I feel anxious that a serious side effect will happen but just trying to do all the things to help myself & am preparing for the hair loss. Afraid to brush my hair (as if that matters!) What a crazy, scary journey we're on. Yep - defo going through an info overload. Day at a time!  Good to connect xx

  • FormerMember
    FormerMember in reply to PinkLady2021

    I have my second chemo today, my symptoms started after 2nd day, I wrote done all my symptoms when they happen, my temperature, what medicine I took and times. What foods tasted like & drinks. Now that my second one is here. I looked at my notes and picked up things that helped. Like ice cream & Gatorade & Tylenol. They didn’t offer cold cap so my hair start failing out exactly 2 weeks after my treatment. I buzz cut my pixie to a #2 on day 24 because it was coming out in clumps and I was sick of hairs everywhere. Right now I have a few hairs everywhere more like a kiwi. Lol I suppose I’ll be a smooth bald soon enough.  I mostly post in the breast cancer group, under the monthly chemo post, the ladies there a helpful with side effects

  • FormerMember
    FormerMember

    Hi. It is a difficult journey but the initial diagnosis and waiting for results for me was the hardest. So much information to digest in one go and it will take time to come to.terms with, but you will.

    It does get better and when you start treatment it kind of gives you something to focus on.  Laughter will definitely return, even if it doesn't feel like it at the moment

    Wishing you all the best

  • FormerMember
    FormerMember in reply to PinkLady2021

    Pinklady2021 it would seem we've been diagnosed at around the same time so I so understand the emotional roller-coaster you have been on. I start my chemo on Friday and am battling with insomnia as all the thoughts run through my mind! Hope your side effects have not been too bad!