Hi I've come to the end of my chemo..I've still radiotherapy to go but I'm struggling to find or read about anyone who hasn't had a reoccurrance when lymph nodes are involved...I'm grade 3 tumour 4 lymph nodes involved with lymphovascular invasion and extracapsular spread im Her2 negative...it would just be nice to know if there are any survivors with a similar diagnosis
Hi Hel…I’m completely back to normal as I was pre cancer…a few scars from the ops but that’s all….I’ve very little if any side effects from the tamoxifen just the odd hot flush…the chemo took me through a forced menopause but my friends who have to go through it naturally have struggled more….I’m not trying to sugar coat the situation as yes I still panic with every ache & pain but nowhere near as much….& cancer isn’t at the forefront of my mind anymore as it was…I was grade 3…4 lymph nodes involved & lymphatics invasion…had mastectomy lymph nodes clearance ..12 rounds chemo & 3 weeks radiotherapy…I’ve just had the final minor operation for reconstruction…I’ have to have an infusion for my bones every 6 months for 3 years also I have no side effects & it’s a very simple procedure….so I really am back to normal & pray I stay this way…there are so many survivors now…let me know how you go & contact me any time…much love Clare …you can find me on instagram Clare farnell 1976
can you remember how long the steroid crash lasted for? I’m on round one EC and finish my steroids tonight - barely slept since Wednesday when I had infusion but dreading coming off them also.
Hi Hel39, my steroid crash lasted about 2 / 3 days. The best thing I did was ask them to reduce my dose slowly so I didn’t crash. God it was awful and looking back, I felt almost suicidal. I’m glad I was persistent about them reducing it. When I went to PC, I stopped the steroids as it was a ‘kinder’ chemo that the EC
i wish you the very best, you do survive it and you will get through it xx
Hi all! Gosh- how time flies. I’m doing well, after chemo I had surgery December 2020 then radiotherapy started the day after my 40th birthday. I had 19 rounds in total and I was exhausted by the end.
now~ I’m well. I love being alive and I feel so very grateful. Mentally it’s been rough and I had extensive counselling as I was diagnosed with PTSD and for a while my anxiety was crippling. I take each day and try not to over think but I do worry about it coming back.
I have residual issues with my shoulder and nerve damage but nothing compared to what I thought.
how is everyone else? So good to have a catch up! Xx
Thank you. I’ll be sure to ask the nurses about dose reduction then. I’ve got two more EC and then 3 x docetaxal and have to take steroids in the three days prior to the infusion for that one.five more rounds seems such a long way to go at this point.
Brilliant news so happy you’re doing well …I’ve had the diep also had nipple reconstruction 2 months ago…physically back to how I was pre cancer…I just have a wobble mentally every now & again worrying about reoccurrence but otherwise I’m fine xx
