Worried about Brain Metastasis

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Hi. My primary diagnosis was in 2012. Single mastectomy, chemo and radiotherapy. Followed up with tamoxifen. 
However, in 2018, I found a swollen supraclavicular lymph node which tested positive. The node was removed, chemo and radiotherapy and medication changed to anastrozole (after removal of ovaries).  All quiet for 2.5 years. However, I am now beginning to feel a pressure/ache feeling on the back of my head/top of neck and I am really worried this is a sign of brain metastasis. I am too scared to talk to my oncologist as I know the prognosis if confirmed is not good and I currently have a friend going through this. I just simply cannot bear the thought of having to face this. 
with all the current stresses, I have felt very anxious and I face a lot of pressure at work and now, I am worrying constantly over this too. 
Im just wondering if anyone has experienced anything similar or can give me some more advice on how brain metastasis feels. Clearly hoping for reassurance, but if not, I know I need to face this head on. 

  • HI KJA welcome to the forum and I am so very sorry to hear how worried that you are. I can appreciate why you are worried that this could be something sinister but a couple of things in your post make me wonder if this could be being caused by something else entirely. 

    I can see from your post that there are a lot of things happening in your life that are causing no end of stress, anxiety and general worry which over time can cause us to tighten our muscles up and in turn this can cause pain and its usually the neck area that it manifests itself in. I speak from personal experience as this has happened for me in the past and it can be really painful. You are worrying constantly about work as you say and this can take its toll on you as well. You are supporting a friend who has a brain tumour and this will be bringing back horrible memories for you when she talks or undergoes treatment etc.

      All of the above combined would make me think stress rather than anything else but thats just my thoughts however, to offer you complete re- assurance you gotta make that call and get seen and checked out to put your mind at rest.

    Meantime Im sending some huge big hugs your way for now.xxxx 


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  • Thank you so much for your reply. When I take a step back and look at the situation, I too agree that stress may be the key factor at play. However, the worry is always there that it is more sinister and you are right, the only way to know for sure is to make a call. If the news is positive, it will be the best call I ever made, but if not, it will be the worst and I am just not sure I can cope with this. 
    sending you hugs right back. X x 

  • I'm with GRANNY59 on this as stress also causes me neck pain and headaches.  Hopefully that's all it is but on the off chance it might not be then the sooner you get it investigated the better the chances of treating it successfully.  I would make that call if i were you and get it investigated.

    Wishing you all the best xx