I have just been referred by my GP for BRCA 1&2 testing following a discussion re family history after my dad passing due to aggressive pancreatic cancer - him mum also passed due to pancreatic cancer (increased risk associated with the BRCA genes) and both of his sisters developed breast cancer in their 40s. I don’t want to get too ahead of myself as I don’t even know if there will be a positive result but the doctor mentioned options following a positive result such as double mastectomy and removal of ovaries. I am in my 20s and have not yet had any children, so wondering what usually happens and what my options might be, can you wait and look at these surgeries later or are there other options?
Hello Bambi
I am Brian one of the Community Champions here at Macmillan. I have just noticed your post has gone unanswered. I can't answer it myself as I have a different cancer. By me replying your post will be "bumped up" to the top of the group and I hope seen and answered by other members of the BRCA positive group.
Just a thought, you could post your question to our nurses and here's the link you need:
I hope this helps and you get some answers.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
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Hello Bambi, I’m a bit late replying but hopefully you’ve also found some answers elsewhere. I’m sorry to hear about your family’s cancer history. It sounds like you’re being grounded in the reality of until you get your results there’s not a lot to do. I found out I had the Brca 1 gene defect in my mid thirties and took my time deciding what this meant to me and my family’s life. I went for yearly breast mri scans during this time to ensure any cancer that may develop would be caught sooner than later.
For my ovaries I waited until I was forty to have surgery.
I usually give the advice that everyone has their own decisions to make. Therapeutic support helped me figure out what I needed and wanted, especially since most people I got support from had their own opinions. There are ivf and egg harvesting options available that your medical team would help inform you with if it comes to that.
I wish you the best of luck and if you’ve any other questions in the future feel free to ask!
hugs, Marie
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