Anyone else had their gene test results come back mine not BRACA BUT RAD51C..My test was in Feb 24 ..results just back last week as positive. How long for appointment to seen gene consult????
Had triple neg breast cancer, gradex3 ..sentinel node biopsy no lymph affected. , removed cancer Feb. On round 6 chemo now 5 to go ..was to have radiotherapy after chemo , but now gene found they say that may change ..but wait to talk to specialist as they did not know enough about this gene Feeling tense , as to outcome..also have three girls who also could be affected...more worries
Hi Katkin
I hope you don't mind me replying as my cancer was endometrial but by doing so it will bump your post and hopefully someone with more knowledge about the genetics will respond.
You could in the meantime give the Support Line a call and one of the nurses may be able to tell you about the genetic side of things. I will also pop a link with some info that may be helpful.
Inherited breast and ovarian cancer | Macmillan Cancer Support
How are you finding the chemo? I found mine quite hard at times. I hope you are not having too many side effects. I also had some radiotherapy and it can be hard mid treatment when there is still some way to go.
I can understand the worry when you are a Mum as well. I hope that you can get some answers soon but please do talk things through with one of the Macmillan nurses on the Support Line if you feel it would help.
Jane
