BRCA and hysterectomy

Hi DDG1967 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I haven't been tested for this gene, so can't help with your question, but I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list where it'll be easier to spot.

If you're unsure about any of the proposed treatment, it's important that your speak to your nurse or consultant so that you fully understand. You can't really sign a consent form for treatment/surgery if you don't understand the implications. I'm sure someone from your hospital team will be happy to talk things through with you.

x

Thank you for responding in attempt to gaining s response I really appreciate it 

Hi,

My daughter in law has the BRACA gene and was diagnosed with breast cancer in one breast last November. She was advised against a double mastectomy and other treatment options were discussed. She chose to go for a double mastectomy as a precaution (and reconstruction) with possible hormone therapy and chemo. As things have turned out, the wonderful surgeon has been able to clear the cancer from her breast, so no further treatment is required. That's not to say that a hysterectomy may not be required in the future so regular monitoring will be key. I think it's really important that you get the test results and if you do test positive, that you ask your cancer nurse to explain things to you. Don't be afraid to ask as many questions of the cancer team as you need to. 

Good luck 

Karen 

Thank you so much for sharing your daughter in laws story. It is really helpful to hear about others going through the same thing. I have found out since that I am triple negative in one breast which is the one the medical team are focusing on right now. I think once this is managed they will probably be discussing managing the oestrogen positive cancer and if I need a hysterectomy eventually then I will do what’s advised. So much information and changes to treatment plans currently is throwing me. I am awaiting to see if either have spread to lymph nodes which will change the treatment plan once again. That’s why success stories are so important to keep everything in perspective and know we got a chance to beat this!

Sending you huge supportive hugs. 

Hi I am BRACA 2 and when I first learnt of this opted to have my ovaries removed. A  reduction of getting ovarian cancer as this is a high risk with a BRACA gene. I had already had a hysterectomy. I opted for annual surveillance.  Breast cancer was diagnosed in February 2022 It was TNBC.  I was clear that I wanted a double mastectomy and because I didn't have enough body flesh I was advised to have implants. i then had chemotherapy because of the TNBC. I think you to take one step at a time.  Write your questions down and take someone with you. The genetics clinic will be able to offer you advice and the new treatments available.

All the best