So, as I've read on here, a lot of people don't know how to feel about knowing you have the gene mutation. I'm in exactly the same boat. My aunty was diagnosed with breast cancer 2 years ago, and she is the reason I have found out i have the gene mutation, which I am so thankful for knowing (most days). Unfortunately we lost my aunty to ovarian cancer in May after she had beaten breast cancer and was getting ready to beat the ovarian cancer. My mum has the gene mutation, and has already had her ovaries and tubes removed, now waiting for her double mastectomy and natural reconstruction in August. I have appointments coming out my ears since i found out, I've seen the gynae surgeon to talk about surgery, he said to talk to the breast surgeon 1st as if I go for the natural reconstruction then they prefer the stomach area clear, fair enough. Went to see the breast surgeon, absolute twat! They don't do natural reconstruction at that hospital, and he didn't seem happy that I wanted to go down that path, or at least get more information about it. He seemed like he just wanted to stick any old implant into me for now. Just thankful the breast care nurse was there and insisted he send off a referral to another hospital. I'm so thankful to my genetics counsellor for chasing up the referrals and also sending me for annual breast MRIs (that's an experience and a half).
While going through all this I feel guilty. One of my close friends was diagnosed with cervical cancer last year, she went through chemo and radiotherapy. She recently went to have a radical hysterectomy, and unfortunately the found more nodules which have been confirmed as cancer and she she is going for chemo again. At this stage it's all about trying to control it. I feel so relieved that I have the chance to go through preventative surgeries, and yet so guilty that she is going through all this crap and just trying to stay positive and strong for her boys (same age as mine) and her husband. I have always been crap with words and I have no idea what to say to her.
Sorry for waffling, I just needed to get this all out 
Hi Dange84 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm not a member of this group but noticed that your post hadn't had any replies yet. Responding will 'bump' it back to the top of the discussion list where it'll be easier for the other group members to see.
While you're waiting for replies, it would be great if you could pop something about your diagnosis and tests so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
