Hello all,
I have recently found out that I am BRCA1 positive. I lost my mum to triple negative breast cancer at the age of 58 and although she was never tested I was recommended to get the test done myself as one of my mum's cousins is BRCA1 positive and had breast cancer twice in her early 30's.
I am currently waiting to be referred to the relevant clinics for further discussion but during the wait for my genetic testing results I had already come to a pretty strong conclusion that if it turned out that I was positive then I would want a double mastectomy as soon as possible. After seeing what my mum went through I want to avoid that if possible.
After reading through forums and people's experiences it seems as though many people opt for reconstruction. I will admit I barely have a chest to begin with and due to the fact that I have been going through a considerable amount of anxiety I am not at all fussed about having a reconstruction. I just want these ticking time bombs off!
I am curious to know if there is anyone out there who has had a double mastectomy but opted not to have a reconstruction. How long was the operation? is scarring very obvious? any kind of information really!
I feel very lost and alone right now. My family are trying to be there for me but ultimately cannot relate to what I am going through. Having already lost my mum to this disease it brings along an entire range of emotions on top of coming to terms with my own diagnosis with this gene mutation.
Any advice or thoughts would be greatly appreciated.
