Screening vs Mastectomy

FormerMember
FormerMember
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Hello,

I am in my mid-30s and found out a few years ago that I carry a BRCA2 mutation. It was not a huge surprise given my mother died of breast cancer aged 34, and her mother was diagnosed in her early 40s, but survived and was also BRCA2 positive. 

I recently had a second baby and am now weighing up a risk reducing mastectomy or to continue with screening. It seems that most people who are BRCA2 positive and have a family history of young diagnosis of breast cancer do opt for surgery, and in black and white terms it is the most obvious way to reduce my risk and be there for my children.

However, I would be interested to know if there was anyone with a similar profile to mine who had opted just to have screening and had either been glad they did/or regretted it? 

  • FormerMember
    FormerMember

    Hi sweetie I was told I was BRCA2 positive two years ago I opted at first for screening but it really is not for me! I get too stressed and emotional the run up to the screening and worry constantly in between! I have opted for surgery however I am now in my 40s and have completed my family.

    I do believe it is a personal choice and a hard one to make x however I do have a supportive family and NHS team round me which is also important.

    Here to help in anyway I can!

    N x

  • FormerMember
    FormerMember in reply to FormerMember

    Hi N,

    Thank you so much for getting back to me. Yes, I can imagine the emotional strain of waiting for results could take its toll!

    Gx

  • FormerMember
    FormerMember in reply to FormerMember

    BRCA2 is an emotional rollercoaster ride. I am always here to assist if you need! X

  • I tested positive for brca1 have already got OvC and had surgery 18 months ago.  I opted for screening as they advised if anything occurred it would be caught in very early stages and could be treated without the possibility of chemo. I still wonder am I doing the right thing, as the possibility of having to deal with another cancer is daunting, but so is more extensive surgery! If I hadnt already got cancer I might have opted for the surgery. It's a hard decision.

  • Thank you for this.  I also have opted for screening and also take tamoxifen.  In February I had a recall from my annual mammogram.  However it was good news.  it remains a hard decision what ever you do.  Good luck and keep smiling.

    ricki
  • FormerMember
    FormerMember

    I found out I had the gene 3 years ago, my sister also has it who is 5 years older than me. She had the surgery and recovered really well and I decided I wanted to wait until my kids were independent enough before i thought seriously about it. The last mri I was called back and that was the deciding factor and I didn’t want to take the risk. The scan was fine, but didn’t want to live in fear.

    Ive now had the surgery and it’s taken 6-7 weeks before I’ve got back to ‘normal’ish’ and I wouldn’t regret it as I know I don’t have to worry about it going forward.