New Research update

Hi ricki, my reading of this from my own knowledge/experience:

I wouldnt have said brca2 is low risk 

The research is of pre-cancer women, follow up for 10 years. But some cancers come back after 10 years so these are not

included.

I'm brca2, had triple negative poorly differentiated tumours (turned out to be two). I'm told if TN is going to come back

it is most likely in first two years, but you've always got that worry in the back of your mind.

So you may get BC but discover it doesnt kill you on the day you die of something else, but life would have been so much better

without that anxiety and long term effects of treatment.

Maybe some women go through cancer treatment and come out unscathed, but it seems like every none bc related

health issue I've had since, bc treatment is another complication to consider.

I hope this makes sense. These research papers are not written for the patients are they? You wonder if the researchers

have a scooby about what going through bc is like.

Its late and I'm tired but I wanted to say something about this. We are all very different in our attitudes to bc and our decision-making.

It has to feel right for you. I'm not sure I would use this bit of research to base such a decision on. Good luck xx

Hi annie

Thanks for this response.  I agree with your healthy skepticism and hence my question to the geneticist about their views!  I am 67 years old and the common thread I am getting from the professionals is that I have lived without BC for much of my life time risk.  There has been a reluctance (possibly imagined) to agree to my going through a double mastectomy. Do I understand the risks facing me with such a big operation has been the constant cry.It seems I am damned if I do and damned if I don't.

All in all I guess there is not easy solution.

Good luck to you too xx

Hi ricki, well brca2-related bc tends to develop later in life than brca1. I was told at age 50 (2009) that I had outlived my risk of 

genetic bc (wrong), and I only qualified for testing after bc (2013) because mine was triple negative - supposedly being a higher indicator

of a genetic cause.

I think I misread your original post and I thought you had had ER+ve bc (I can only see your reply on the screen not the whole thread)?

BMX is a big deal, but nothing compared to bc treatment in my experience. I had reconstruction - that comes with 

additional unnecessary issues. I've felt at times that recon was a crazy thing to do, but 5 years on its finally settling down.

I hope you can get up to date statistics from the geneticist that can help your decision. xx 

Thanks Annie

Nothing is simple but I do feel better prepared for my meeting with the breast surgeon tomorrow.xx