I lost my partner of 31 years on Wednesday after a 4 year battle with prostate cancer. He was doing so well until September when his health started to decline, he woke one morning partially blind and two weeks later he was completely blind, he had MRI scans of the head which found nothing, He saw several eye specialists, a neurosurgeon and they all came up with nothing. In late November he could not get up from the sofa, lost his balance and all co-ordination and was taken into hospital. He stayed there until the middle of January when after all tests they told us that the cancer had spread everywhere including multiple mets showing on a head scan. They gave him two months and he said he wanted to die at home. A fast track care package was implemented and I brought him home. It was the worst 7 weeks on my life. He was helpless like a baby couldn't see, get out of bed, sit up or even roll over, he had no appetite and lived on an Actimel a day. I was told there was nothing they could do about and artificial feeding was not an option. On Wednesday he went down hill so fast I called the district nurse and she came out and gave him some injections for breathing and pain. After that he was only semi conscious and breathing heavily, I held his hand and told him I was there and asked if he could hear me and he nodded, I told him I wouldn't leave him. Eventually he stopped nodding but was still breathing and I ran upstairs desperate for the loo and in those few minutes he died alone. I cannot get over thinking about that as though I let him down at the last minute. I also cannot get over the situation that he found himself in completely blind, neither of us had ever remotely thought that something like that might happen. I cannot bear to sit in the living room as they cannot come and pick up the hospital bed for 3 weeks and every time I look at it my breaks more. I am so sad I don't know what to do. My heart goes out to anybody in a similar horrific situation.
So sorry to hear about your experience. Don't blame yourself, though: I gather it's quite common for people to die when their family members have left the room, for whatever reason. You were with him and he know you were there which is what matters.
So sorry for your loss. My husband passed away 5 weeks ago after being ill with stage 4 lung cancer for 2 years. His initial diagnosis was a few weeks so I am very grateful for the extra time we had with him. It was a rollercoaster of two years with not great care. In the past year he kept losing his voice and the past few months it was down to whisper so he found it very difficult to communicate which washeartbreaking. He had a fear of choking to death and wished that he could pass in an instant. He got his wish. He was admitted to the hospice for management of his symptoms and we hoped to have him back at home for a little while but that was not to be. He had a pulmonary embolism and died in the hospice I am told in I. An instant . Although we knew he had a little time left, I did didn’t expect him to die so suddenly. I left him the night before and didn’t say goodbye properly as he was falling asleep so I just said see you tomorrow and we can have a coffee in the café he didn’t respond . I did not get the chance to have a coffee and to say goodbye properly and to say other things I wanted him to know and it keeps going round and round in my head, so I understand how you are feeling right now and I wish I could help you take comfort in the fact that he could hear you and he knew you were around.
This grief. I am feeling is so painful. after 40 years of being with someone it’s understandable! I aM having better days but still finding it very, very hard. I’m trying to keep busy but also need to rest as exhausted. As best as you can take care of yourself x
Thank you so much for your kind words and I am so sorry for your loss and know exactly how you are feeling. I feel so guilty about going to the bathroom and worrying about if could have done more for him. It is our anniversary on Monday which will be very hard. I cannot bear staying in the house and wish I could be somewhere else. Some people can take great comfort in their memories and love having things around them that remind them of their loved one. I am not one of them I cannot bear it I look around and all I can see is the last 7 weeks of the most horrific circumstances I have experienced in my life. Going to bed is painful, watching something on TV that we watched together is so hard to bear. I cannot even get in the car because I remember how excited he was when we bought it from new and now it means nothing without him. I just hope for both you and I to eventually get to grips with our loss and we can emerge stronger which is what both our husbands would have wanted. Many blessings.
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