Well today marks another `milestone` for me. It is exactly 18 months to the day when I lost my dear husband Jay to bowel cancer and sepsis. He passed on the 23rd June 2023. It hardly feels like 18 months and I have amazed myself what I have managed to do on my own without him since he passed because at the time when he was in his final days I just could not see a way forward without him and went to a very dark place just not wanting to be here without him. But bless him in his final days he was the one who said to me that I was the stronger one in our relationship and he did not know where he would have been without me and that I would go on without him and in a way he was right. I reached out to a few organisations including here at MacMillan and got some help and counselling and they did help me see that there are people I still need to be here for. My older sister who has learning difficulties and has also just come through a cancer diagnosis for a 2nd time. She had very early stage bowel cancer discovered only two months after Jay passed but unlike him, it was caught early so treatable and five years ago she also had breast cancer again caught in its early stages and treated. She is now an out patient and still under observation with the hospital. My son, his partner and my little granddaughter are all also here so for me it is as though I am the `glue` that is holding all them together but gives me a purpose and it helps me to help them and I like to come here to the forums to try and offer support for those who may just be starting out their bereavement journeys here.
Sometimes I will sit when I have done something that I am pleased with, I will sit and say to myself `did I really just do that`?? so I am making little achievements on my own. The biggest achievement I feel is that I have gone back to driving. It was one of Jays last wishes that I do that. For a number of years I had been unable to drive due to ill health myself I was constantly taking blackouts and these were/can be unpredictable and happen out of the blue so for that reason I had to stop driving. I was hospitalised several years ago for this as growing up I had epilepsy and they thought it had come back but it turned out to be something completely different and not connected to epilepsy at all and they are anxiety and stress related. Not had any of these blackouts for quite a while now so went back to my GP to find out if I could go back to driving and she gave me the OK but on the assumption if I ever felt dizzy, had really bad headaches or similar I do not get behind the wheel and just use common sense. So renewed my licence and everyday I am building confidence in getting out on the road again and honouring Jays wish of me being independent. So many other things have happened since he passed and it is just so sad that he is not here to see them happen. My son gets married this coming February so he won't see that but neither will my future daughter-in-laws mother who also sadly passed away earlier this year from stomach cancer so they will both have a parent missing for their big day but I would like to think they will both be there somewhere celebrating with us. The dark days/weeks still happen as I have posted here previously but they eventually leave and I continue to try to move on. I wish everyone here well in their journeys with moving forward. Take Care.
Vicky xx
Hey Vicky!
I was watching an old Bake Off Stand Up 2 Cancer (I have been rewatching Bake Off from series 1 as I don’t need to concentrate and it’s “fluff”).
In it they had the statistic 1 in 4 will get cancer.
This year they said 1 in 2 will.
Thats some increase in just 4 years!
We thought we were safe as I had Thyroid and node cancer back in 2017 and got away with it.
So it can’t be true my beautiful Valen had it as well, right?
As that would make it 1 in 1.
Im glad I passed my driving test in May at the urging of my beautiful Valen. (prescient of him as we did not know what would happen in September).
At the age of 65!
Because if I need to get out the home but can’t face people I can go for a drive.
I did today.
Just drove until I came to a lovely lake and went for a walk.
Then had to set satnav to get back home as had no idea where I was
xx
Hi MrsVT
Yes thank the lord for satnavs! If i'm not sure where I am going I constantly use mine (don't like the way she shouts at me though constantly telling me for the umpteenth time when to leave a roundabout). Yes it's good we have that and can as you say just go for a drive somewhere and stop for a coffee or something when things become a bit overwhelming at times. My only `bugbear` at the minute is using a motorway I'm still a bit nervy about using those. My son says I need to get over the fear of that. Used the motorway once when I had to go and sell our lovely static caravan just wasn't practical financially for me to keep it going on my own. I told my son to hire a van so I could take personal stuff out of it and he said well we have two cars and I said I can't drive on the motorway and he said yes you can mum and said I will be in front of you and just follow me. So I did but was a bit of a nervous wreck after it. If there is a way to get out of using a motorway and taking an alternative route I will but my son keeps at me that I need to get over it. Maybe I will make it a New Year resolution and go out during the day when hopefully the motorways are not so busy I know they are always busy but during the day and outwith rush hour times they tend to be I think a little quieter. Wishing you well moving forward and have a lovely Christmas.
Vicky x
Hello dear wee Scottish person
I hear what you say and I understand.Yes, the dark days are still there sometimes with me. When I get them , I recognize it, but I usually go into hiding, close the doors and maybe just get my "head down ". Into bed with furry Missy cat. They seem to be getting less these episodes.
Tomorrow is just another day. We will get through it. Look how far we have come ?
Shall see if I stick to my recipe tomorrow. Feeling a bit unwell with a cough and breathless. Very tired.
Lots of love and hugs Fifinet xxx
Aww thank you Fifi!
Yes what you do on those dark days I more or less do as well just shut the door on the world and hide for a couple of days. I do eventually snap out of it though as I have said. There's days I do not want to do anything at all and there are times I feel guilty about not doing anything but I just have no incentive to move when these little episodes happen. I have my sister staying with me for a couple of days so at least it's someone else here. Because of how she is she is not great company but it's company for me just the same. I get time off from dog walking because she likes to do that and I will get endless cups of tea made for me as she is a bit of a `tea jenny` so that's something at least. I'm at my son's tomorrow they are doing Christmas lunch for us be good to watch the wee one open her presents. Yep will just feel like another day tomorrow for me too but I'll get through it. Sorry you're not feeling great. My cousin came in to see me for a little while today to drop a present off we always give each other presents and she had to leave as she was feeling the same way head pounding and a nose like Rudoph's so she was going home she said to go to bed for a few hours. Lots of this about just now. Hope you have a lovely day tomorrow. Take Care.
Vicky xx
I don’t know why it didn’t really register before, but I just realised that it was just over a year from my beautiful Valen’s initial diagnosis of salivary and lymph node cancer to him being ripped from me.
September 24th 2023 he was told he had cancer.
His surgery took 3 hours longer than expected due to more extensive lymph involvement and the need for a thoracic surgeon being called to remove part of his clavicle to get to the tumour on his jugular.
Followed by horrendous radiotherapy burn side effects where the right side of his face literally began to fall off.
Then because part of the clavicle was removed and nerve damage he had severe weakening of the use of his right arm.
Lost 90% of his taste (which he never fully recovered) and for the amazing cook he was this was depressing for him.
Then he was highly embarrassed by the steroids giving him moobs.
Then Hurrah!!!!!
June told radiotherapy had done its job, no need for chemo.
Just a little bit left behind, but nothing that worried them, just keep an eye on at the 3 monthly scans.
July, bloody awful lymphoedema in his left side of neck making it hard for him to swallow, then talk.
Lymph nurse concerned enough that 1 lymph was maybe not working properly.
August - You have 3 to 6 months.
August to end September incredible stress and distress trying to chase his private treatment because the insurers and hospital can’t pice up a phone an d actually speak to each other.
September 26th 2024 he is suddenly, unexpectedly, horrifically taken from me.
1 year and 2 days.
At least we had that precious year.
I know many of you only got a few weeks, even days from diagnosis to your worlds imploding.
Sending warm hugs to you all, my lovely forum friends xx
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