I feel absolutely robbed. My Dad was diagnosed with mestastic colon cancer which had spread to his liver and lungs on the 27th June and died on the 3rd of August at home unexpectedly. He also had blood clots in his lungs and in his legs. He was sent home a few days after with blood thinners and started to become breathless with extreme fatigue (literally sleeping all day) and loss of appetite.
My brother tried phoning the Macmillan oncology nurse a week before he died to explain what was happening and she said they couldn't do anything until Dad had decided if he wanted chemo or palliative. We had the GP out 2 days before he died as we were concerned about his deterioration and they told my brother that everything was happening was due to his cancer the blood clots and medication side effects now he's dead.
Not once were we ever told this was him actually dying otherwise we could have prepared ourselves and spent more time with him. I'm so disappointed with all aspects of his care.
I feel he was so neglected after his diagnosis. He didn't have one visit at home in the month after he was diagnosed until he died until we got the GP out ourselves.
Like I say I feel absolutely robbed.
Hi Helen85
So sorry to read about your dad, it does sound both very difficult and I hope you find some answers to what happened to your dad. My mum died totally out of the blue and the first we knew about her cancer was when it was found in the autopsy - not of course that was the cause fo death.
<<hugs>>
Steve
