I’m not actually sure what to write here, but I am in the process of losing my mother, in the most brutal way. It’s paralysing her, it’s in her bones and in her organs. She’s lost the use of her legs as it’s in the spine. This weekend she’s taken a turn for the worse and I can not get my head around what’s happening and how sudden it has all gone downhill. She doesn’t even look like herself anymore, she’s delirious from all the pain medication that she’s on but it’s not touching the pain, I can’t bare to see her like this, it’s haunting me the image of her. But I can not imagine how scared she must be. She cried to me yesterday and sobbed saying that she can’t carry on anymore. I am absolutely heartbroken. Tomorrow we are discussing with the hospice whether to start giving her pain meds intravenously. But once that happens it’s not going to be long. I know this having worked in end of life care.
I don’t know how to cope or what to do. I just need someone who understands what I’m going through. Thank you for taking the time to read this
Hi Loopylou88
Sorry to hear about what your mother is going through. My nearest experience would be with my father though in his case it was not cancer but was something of a long drawn out illness that robbed us of him bit by bit.
When he died it was still something of a shock though of course the feeling that he was no longer suffering helped some. It took a while to for the good memories of the years together battled through those final months.
Glad you reached out on here, hope you find the community helpful.
<<hugs>>
Steve
I'm so very sorry to hear about your poor Mum and what you are going through right now. I really do understand all the emotions you are going through......I've been there with my lovely Dad.
My only advice (and I'm sure I'm not telling you anything you don't already know) but once we got my Dad into our local hospice and they got his pain and discomfort under control, my Dad visibly relaxed. I believe for the first time my Dad felt truly safe. The 'angels' in the hospice cared for my Dad (and us) as though he was their own Dad we were family. We also knew as soon as he was put on the syringe driver that the end was near, but we also knew he was calm and comfortable and it allowed us to sit and spend time with him knowing he was being so well cared for. Right up until he was admitted to the Hospice my Mum had done everything for him. It was too much, he was sadly 'lost in the system' so they had no help, no Macmillan nurse and only a community nurse who visited several times a week to dress his pressure sores. She did absolutely nothing to help my parents. Nothing. (sorry, still very angry at how badly the NHS let them down)
However, the care and respect my Dad received at the hospice was amazing.
I guess what I'm trying to say is that I think both you and your Mum will feel so much calmer when her pain is controlled. I hope you manage to enjoy your time with her knowing that she's being well cared for and hoping her anxiety and fear will lessen.
You will cope. You will. You are coping.....you are doing a great job caring for your Mum. Don't be too hard on yourself. Sending love and strength to you and your family. xxxx
Hi there, I wanted to say that I am thinking of you, and sending you strength. Kind regards.
Thank you for taking the time to respond, I really appreciate it, and I’m so sorry for your loss. And I’m sorry you have been let down by the NHS, we are also having this issue but along side that we are having issues with the hospice, poor communication on their behalf and a lot of this blame game on our family when in actual fact it’s them that are screwing things up! No compassion or empathy for my mother or my sister and I! It’s disgusting! Thank you for your kindness and for reaching out to me it’s made me feel not so alone so thank you xxx
Thank you for taking the time to respond I really appreciate it, any loss whether it be to cancer or not is just as equally hard. I’m so sorry for your loss xxx
Hi Loopylou88,
Just a quick message to check in with you. How are you?
I'm really sorry to hear your experience at the Hospice hasn't been a good one. That is very disappointing to hear. All I'd say is keep speaking up, if something doesn't feel right, say something. Speak to someone in charge. We as a family are really struggling with the guilt of what my lovely dad endured, hindsight is marvellous and we would never have gone along with what was happening(and not happening) to him if we'd not been so caught up in it. At the time we put our trust and faith in the healthcare professionals. But looking back they let him/us down, very badly. So please, if you're not happy with your mum's care please do speak up for her.
Sending love and strength to you all. xx
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