I'm finding it very difficult to speak up, but I'm struggling massively and need some support..
My life has completely changed and destroyed in such a short space of time.. early hours of Thursday the 11th of November, I had rang an ambulance for my mum, as she had been experiencing abdominal pain, since March but the doctors kept palming her off with different medication over the telephone, without seeing her.. the pain was bad, she was staying over with me and my 7 year old daughter for a few days and I felt so worried I needed her to be checked over ASAP.. on Friday the 12th of November, I was called into hospital, into a room wirh my mum, to be told after they had done a CT scan, it showed my mum had stage 4 pancreatic cancer, in those moments, our lives were just completely torn apart.. I've never experienced anyone close to me, have cancer, I'm 32, I've lost my grandad, nan and my dad and my mum was my only family member, apart from my daughter. I didn't even know anything about pancreatic cancer, I'd heard of it, but never knew anything about it, because I never needed too? To be told it had spread onto my mum's liver and she had 9-12 months with having chemotherapy, was absolutely horrific, my mum isn't just my mum, she's everything! My best friend, my whole world.. we did everything together, I'm a single parent to my daughter and she doesn't see her dad, so my bond with her and my mum was absolutely incredible! The 3 of us were inseparable and I would speak to my mum numerous times throughout the day, every day.. after the news on Friday, mum was allowed home on Sunday.. mum chose to stay with me, for me to look after her.. it was scary, I didn't know what I was expecting, I didn't know what was to come, I've never seen anyone die, I've never watched anyone become poorly! The hospital rang on the Monday, they told me mum was alot more poorly than first anticipated and had months, her cancer was on her liver and chemotherapy wasn't an option.. I couldn't process any of it! I couldn't accept it, I couldn't believe it! Everything went from 0-100 so quickly! My whole world was destroyed so fast.. those days at home were so scary, so sad, so unimaginable. At 3am on the 17th November, my mum woke me up, panicking, screaming, shouting.. I was trying to help her, whilst on the phone for an ambulance, she was in a state and I didn't know what was going on? All this was happening whilst my daughter was watching, the screaming had woken her, I didn't even realise she was stood in the door way, for a while as my focus was holding onto my mum who had fallen off my bed.. after the paramedics arrived, they put oxygen on mum and did observations, within minutes, my mum was gone.. my mum died in my bed, in my home just 5 days after diagnosis.. this is the most horrific pain I've ever experienced, I am completely broken, I can't process any of it. It all happened so fast and so quick, I hadn't even come to terms with the diagnosis let alone anything that came in the 5 days after that. The trauma I have is awful, I don't know what to do or where to turn? I miss her so much it hurts so bad, I just feel like I can't do this.. i want my mum!
Hi Carly89 what a very sad and shocking experience you have gone through. I can't begin to imagine what it must be like. Hopefully you have close friends you can talk to and who can help and support you. If you need to you can call MacMillan (see number below at the end of my post) who should be able to give you help and advice and point you in the right direction of where to get some support.
I am so very sorry for your loss.
Hi Carly. Your story is very similar to mine, I thought my mother left us too quick but yours is so tragic also. My mother was fit and well until she had a pain in her side, a ct scan a few weeks later also revealed exactly the same diagnosis as your mother.
We couldn’t come to terms with the diagnosis either and 3 weeks later she had passed away in a hospice. My story is slightly different to yours but I still find my memories of the last month traumatic, so I can totally understand how you are feeling. You probably felt so helpless and scared when she became unwell, you also feel very vulnerable yourself but know your mother needs you.
take comfort in that she was not alone when she passed. I know the trauma of passing in your house must be absolutely horrendous but it could have been on the back of an ambulance, in a&e or on a busy ward. You have to take the smallest comforts in these situations.
What you have been through is absolute hell, your only a year older than me and with a daughter to keep strong for it must be so hard.
Loosing my mother has been the most awful experience of my life, it is rock bottom and feeling like you’ll never smile again. Trust me when I say I know exactly how your feeling. But your mother would never ever want you to be hurt like you are, she’ll be looking down so worried so you have to look after yourself. It’s my mothers funeral tomorrow and I’m an anxious wreck but I’m going to try and be strong for her. She didn’t want to leave, she was absolutely robbed of her life, just like your mother.
I also understand why you just say you want your mother. It’s like we revert back to childhood and feel we are no longer adults. I feel like that also, no matter what I did I want my mother, even though I’m 31 and was pretty independent up until 3 weeks ago.
I found the first days after she passed with me there were really tough and I tried to analyse absolutely everything about what happened. Did I say the right things, was she scared, should I have done more, why did I do this or that. I used the cruse online chat and I’ve referred myself for bereavement counselling also, there’s a long wait though so I suggest you do it ASAP. It might help to talk through the events of your mothers passing. I find bottling it up doesn’t help me at all.
anyway sorry if this really long, I hope it helps to know your not the only one going through this. Pancreatic cancer is a silent killer, I have no idea why it is not publicised more but I will definitely be funding its research in the future.
If you ever want to talk I’m here
I really hope today goes as well as it can for you, I'm not sure how this all works as I've never used anything like this before but are we able to swap details and be in contact? I'd love to be able to speak to you properly because our situations are so similar..
Thinking of you today
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007