Feeling lost and confused

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Hi

I lost my mom end of May to metastatic lung cancer. 

I am now starting to feel quite confused and not understanding how it happened. She was diagnosed in August 2019 at age 50 and had an op to remove it in the October. Told no spread had mop up chemo then 6 months later may 2020 after just loosing my grandad my mom was taken ill and told it had spread to her brain. 

How did they miss it? I've found out that on her original pet scan they had put the 'n' down as a 2 but then afterwards decided it was a 0. Why would they get different results from the pet scan to actually looking? I can't help but feel that they did in fact miss it was in the lymph nodes like the pet scan had shown? And why don't they give you a follow up scan afterwards as in the time it took from the scan to operating the Cancer tumour had already grown a lot. So I can't help but wonder that if that had grown then it could also of spread in that time too. 

Also she must of been in so much pain at the end because she had stopped swallowing her tablets the night before and although they gave her an injection on the morning they never got to her in time for the syringe driver. 

Sorry for the ramble I'm just not understanding

Sarah 

  • Hi Sarah I'm.so sorry for your loss, I have been through and am going through similar now, my mum  had op in Feb to remove her tumor on her lung, they said it was curable,, the op was a success and said all was good she had chemo after to mop up cells, she never had  a scan for 6 months until August  she then got the results of her scan 3 weeks ago and was told she had 3 to 4 months to live  as tumor had spread to her liver , devastated,  she started her chemo and immunotherapy last week bushes ended up in hospital with am infection friday , which they think is the chemo and a reaction but can't be sure . I'm again so sorry for your loss and if you want to chat I'm here 

    Julie xx

  • Hi Julie, so sorry you're in this position. 

    It's the worst feeling ever isn't it. I just can't understand how they say, they have got it and then it spreads.

    It's sounds a similar time scale as my mom it was around 6 months after the op.

    Make as many memories as you can as that's my biggest regret because of covid we couldn't do things, see her as much and take mom out like we wanted. We had actually booked to take her on holiday but passed away the day we would of gone.

    If you want to chat I'm here also

    Sarah xx

  • Hi  Sarah  it really is a nightmare , I'm so sorry for all you had to go through and your mum .  Life just doesn't seem fair at all , I have a lot of ifs and buts in my head , just have to be there for my mum, try keep strong and I will be on here to help in any way I can 

    Love Julie 

    Xx