My eldest son was on 31 when he was told he had a brain tumour on 26th November 2019 he had 5 brain surgeries in under 2 weeks & died exactly 2 months after being diagnosed he had a scan in 2015 that should signs of a tumour but it wasn’t followed up & after 2 months of gp saying migraines optician finally spotted the problem
I feel I’ve been robbed of my son by nhs negligence I’m angry frustrated and can’t believe he’s gone he was my rock I’ve 3 other children
I constantly think I should have saw signs quicker as looking back he had been forgetting things & had more headaches
I also feel guilty I never told him how bad things were as after the surgeries his memory was awful he had been moved to a hospice before Xmas & wanted home which unfortunately wasn’t an option as he was so ill
people say it will get easier but I’m not so sure I’ve nobody I can really talk to about everything I’ve health issues so now been told 12 weeks isolation which I don’t get out much anyway so shouldn’t make much difference
sorry just needed to vent
I am so sorry to hear of your terrible loss. We lost our 36 year old daughter to melanoma in September.
She had been to a dermatologist who said, although even to the untrained eye it was obviously wrong , oh we'll keep an eye on it. Then again a further three months later. She moved to another area of the country about then who removed it immediately but basically it was too late by then. From that diagnosis point she lived for 16 months.
I can therefore understand your upset that you feel your son was let down. I try not to think too much about that as what's done is done. Nothing will bring our beloved, adored children back. It's absolutely heart breaking. In the early weeks I didn't think I'd be able to carry on.
But whether we like it or not, the damn world keeps turning, the sun has the cheek to come up every morning when we feel it should all stop.
I don't know how we'll get through this but I think we have to for the rest of our family.
Much love to you.
So sorry for both your losses its heartbreaking x lost our daughter on 25th Feb,aged 36 so few weeks into grieving process ! At a total loss at the moment trying to take positives but at this time the upset is too much. 8 years she battled with primary breast cancer then last 2 years secondary mainly in liver ,spine, and lung , during the years there were many times we felt let down , hard done by and at times really did feel like a number !especially during the secondary phase ? As no specific help especially with her mind processduring this time very weird ? Might be just now im angry not knowing if there was anything more as her dad i could have done ? Hopefully when im thinking a bit more normally I can take stock ? Mind you this pandemic isn't helping ? I really feel for people dealing with a passing right now ? My daughter's funeral / celebration of life which she organized was the day before everything shut down ! Don't want to use the word lucky but we were able to give her the send off she wanted ! Take care john
Hi, I am so sorry to hear of your terrible loss.
I know how bewildering it feels, emotions run through us, up and back down like explosions. I am sorry. Your daughter, like mine, being only 36, it's just not right. We expect to die first and would have given anything to swap places, how can it be right???
Thank you for your condolences, it means a lot. I don't know what else to say other than my original text. Keep going, it's all we can do. X x
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