I had a total hysterectomy robotically with everything removed vaginally, 4 weeks ago. The surgeon told me he had removed everything intact and saw nothing elsewhere. He had previously told me and written to my gp that I shouldn’t need any more treatment. I am healing well and was so happy that I have a second chance of life.
imagine my horror when I had a phone call from the hospital last week saying they were pleased to invite me to an appointment to talk about having radiation to my tubes and ovaries! I said they had been removed and that I had been told my cancer had been contained and removed in my uterus and my tubes and ovaries had been removed at the same time. She seemed confused and cut the call short. I was terrified! Did this mean it had spread in the 6 months I had been waiting for treatment? Was the surgeon wrong? Once I had calmed a bit I phoned to talk to the surgeon, who is always unavailable, got a gynaecological nurse who couldn’t understand why I had the call but suggested I went to the meeting offered just to find out. The radiologist specialist told me the surgeon couldn’t have removed everything vaginally and i must have been sent to her because as it had been cut up to remove through keyhole surgery as they don’t remove vaginally using keyhole and I could have 3 brachytherapy treatments as a back up plan. The side effects of this treatment scare me, vaginal stenosis, having to use a dilator for life to name a couple especially if I don’t really need it in the first place! I can’t seem to get any clear answers from anyone and have no one I can talk. Can anyone here help?
