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I am writing this after one of the hardest days of my life.
It is breakfast time and I am eating while I feel able. The boys are wandering around my feet scoffing pain au chocolat, in their world all is well.
Yesterday I sat in a clinical white office with all the trappings of sick people and hospital in evidence and learnt the news that the Bastard had spread. It is in my bones. My pelvis to be precise. But probably also hiding away somewhere else but just not present on any scans yet. Sneaky fucker...
I was very excited to be included in the 3rd birthday celebrations of my gorgeous little grandson today.
He doesn't know about my brain tumour yet as he's too young to understand. His parents and I need to agree on the right time and words. However, he knows that I have lots of hats and sometimes wear a 'hair hat' ( my hair fell out during radio & chemotherapy treatment).
I feel that losing my hair and not being able to drive are the two hardest parts of this condition that I...
So, two weeks through my six week treatment course today.
I had a few admin hassles when I was transferred from one hospital to another, at my request, in the sense that the receiving hospital was a bit slow in putting things in place, for example physio for my mouth etc. There are still one or two little problems to iron out but my second review today was, I must say, of a nature that inspires much admiration for health care workers, especially in this field. These guys do a really difficult, demanding...
Well. I apologise for being neglectful and not updating.
I have wanted to. But you see cancer totally took over my life this week.
I left you after my return home last week following our second bout of chemo, the end of round one of shrink you Bastard, shrink.
I was prepared, I knew I was going to feel awful. I knew I would be in pain for two days solid and I would feel so nauseous it would be unbearable. Or I thought I was. You see this time, I started to feel ill before I even left the 'therapy room...
Felt good on Monday morning, one week after chemo, 2 days of no radiotherapy. Two sessions of radio later, I feel exhausted again and needed two kips during the day today. All fairly normal apparently, but for some strange reason the side-effects of radio are much less well known than those of chemo. This is not because they are less powerful - even a cursory surf on the net shows this not to be the case and they include, just like Chemo, fatigue and nausea. In my particular case I have been told...
Hi everyone I have organised a play and meet session at play zone in Portsmouth. I thought it would be nice for families and friends touched by cancer to meet whilst their children or grandchildren play :) of really like for you to come along its all free :)
About three weeks ago I received an urgent phone call about some bloods I had had done the previous day. It had taken me a few days to get them done, following some weeks of problems with energy and mobility which I assumed was sciatica and stress related (going through some emotional stuff with hubby). Anyway apparently calcium was high and HB very low and they wanted me in hospital. A week later following tests, blood transfusions, neuro surgeons and other stuff, I had been diagnosed with two broken...
Hi everyone,
I have organized an event at Playzone play area in Portsmouth on Monday 6th July, 6:00pm until 7:30pm. It is in support of my sister who has been diagnosed with breast cancer, liver cancer and bone cancer. Im devastated and still cannot except this. She has three beautiful children, Logan who is 3, Kaleb who is 2 and Isaac who is 5 months old, she has a loving partner and family. She is 33. To young. I have set up this support and play evening because thought it would be a lovely idea...
There is a big debate raging in Wales about the Cancer Drugs Fund available in England. This fund enables patients in England to access drugs that would not otherwise have been routinely available from the NHS. Many in Wales now demand the same thing. Scotland also does not have such a fund, though I do not know what the state of the debate there is.
This morning there was a phone-in on BBC Radio Wales about this. It is of course very emotive. The debate often manifests itself as a simple question...
Ufff. What a week that was. Had the first of my weekly reviews today, with my oncologist and a few others on the team. These will take place every Friday. Five more weeks to go.
My oncologist is a lovely lady, a mixture of humour, understanding and competence that inspires trust. Though I had to work pretty hard to ensure I was treated by her in particular (how is a story for another blog, perhaps).
It seems that my blood remains pretty normal, which is important as the chemo obviously has a major...
