It's not just chemo that whacks you with lethargy, radiotherapy does it too. Why didn't I know that...?

1 minute read time.

Felt good on Monday morning, one week after chemo, 2 days of no radiotherapy. Two sessions of radio later, I feel exhausted again and needed two kips during the day today. All fairly normal apparently, but for some strange reason the side-effects of radio are much less well known than those of chemo. This is not because they are less powerful - even a cursory surf on the net shows this not to be the case and they include, just like Chemo, fatigue and nausea. In my particular case I have been told in no uncertain terms that it is the side-effects of the radio that will hit me most. Yet there seems to be some deep-rooted perception out there which, in my ignorance,  I used to share, that it is chemo that has the big side-effects. Not so, boyo, not so: it depends on the case.

Perhaps it is the hair loss provoked by chemo for breast cancer that makes us think this, because it is easily visible. I see many women (I want to say sisters, even though I am a man) at my cancer centre with headscarves. That's a tough thing, which does not mark us men out as cancer patients in the same way at all. In fact, as a man, I would happily swap my hair for less nausea, fatigue, mouth sores and the return of the taste of food - and people would think I was just another slaphead (heading there anyway!). 

I do not mean to be flippant. Hair loss is traumatic, impacting hugely on identity and self-image and no doubt confidence. But it is only one side effect, and those suffering it must in most cases also suffer the many other less well-known side-effects including those that come from radio. It just seems strange to me, and it is no doubt a sociological phenomenon not one based on the realities of side-effects, that radio side-effects are not widely known.

Anonymous
  • FormerMember
    FormerMember

    Radiotherapy is a killer for making you tired! I did six weeks, with concurrent chemo, and the further I went the more fatigued I became. When treatment finished the fatigue still lasted for a good few months. I had to pace myself especially when returning to work, but it does improve over time. But we all react differently, so it's hard to say how you will fare in the long term. I wish you well for the rest of your treatment. Hang on in there bud xx

  • FormerMember
    FormerMember

    Radiotherapy ... I could go on and on about my RT as I have never been through anything like it in my life ( I likened it to childbirth at one stage, but at least the pains stopped once baby was born ) However, I was one of the ' unlucky ' ones that suffered from a particularly bad reaction to radiation which required being admitted to a ward at the end on my treatments with the ' Death Ray ' aka the linear accelerator machine.

    Time has passed since, I can look back and maybe thank the zappings for being a big part in saving my life. Yes, the sore mouth and extreme tiredness, etc was all part and parcel taking some time to recover from ... but it's ' do-able ' and with help we get through, as you will.

    Last week I went to Christie's for my annual check ( all good for another year ) but I did give the Radiotherapy Suites a very wide berth ! : ) Take care, here for you anytime you need x

  • Join the club! They explain in great detail the effects of the chemo, but are much more dismissive of RT effects, concentrating more on the "burns"! I don't know whether it's the combo of the two, one potentiates the effects of the other, but five months on from RT I still have issues with weariness. It is improving, and it has done the job, so maybe I should try a bit harder. I'm getting a bit too used to becoming a couch tater! Pass the remote! I have a friend who had RT to the neck and throat, very successfully,  and now eight years on, but was extremely wearied by the effects, and had no chemo. It took a couple of years to wear off! I haven't seen anything concrete to help mitigate the weariness. Best wishes. Mary.

  • FormerMember
    FormerMember

    Despite being told and witnessing other people go through the tiredness induced by RT, I was shocked to discover how much of an impact it has. I thought that following treatment life would go on as normal with maybe the occasional nap! How foolish was I ? The tiredness is all consuming at times affecting not only my physical but also my mental ability to function. I start something and just Cant be bothered to finish it, or can be bothered but can't find the strength to do it! Life for me has become more measured and is taken in smaller bite sized chunks . For someone who lived a life at a thousand miles an hour this has been a challenge but one that I am learning to embrace :) I now realise that the world won't collapse around my ears if I don't do everything straight away.

    Six months post treatment I have neuropathy in my hands and feet from receiving chemo and widespread aches and pains in my joints which no one can give me an answer as to the causes. Would be interested to know if anyone else has the same :). However these symptoms are gradually improving and are a small price to pay for a chance at life

    Best wishes and pace yourselves

    Jx

  • FormerMember
    FormerMember

    Ah bless you all my daughter finished her treatment July 1st she's 34 and it hit her hard still is .Her external burns healed quickly internal oh my still has subpubic catheter in but she wants it out but after the visit to hospital to have changed she wants district nurse to do it and I don't think they can .She not had results yet scans done Drs having team meeting Monday just hope she gets all good news before 17th as she going away .