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This is now my 9th entry and when reading through other people’s stories, I have to reflect and count myself as lucky to have made it this far. Though it also highlights to me on a 12-14 month prognosis that I’m now someway into that timeframe and that brings a whole new level of scary with it.
So, at the start of April and a trip to the hospital for 3rd round of chemo and 4th and last round of immunotherapy. It was the quietest I’ve ever seen places, it was like literally a world apocalypse...
Friday, I had a call with the cancer nurse who told me that it could be 3 weeks till I hear about my treatment plan. This hit me quite hard and I struggled for the rest of the day. I just kept thinking why me, what did I ever do t deserve this. I wasn’t going to let this ruin my weekend with my babies. SO...Today was incredible. I decided that I wasn’t going to let the cancer rule my life.. so I thought before my treatment took place I would do the one thing that makes me very happy. I rode my horse...
I have been away from the Online Community for some time as my new normal and work commitments have been such that I have been focused on those positive developments.
I have recently had a PET CT Scan to check progress since my last one (March 2019). Delighted to report that all was clear. My blood test results were also great...until I turned to the final page which dealt with the CEA and CA19-9 readings. They were above the maximum level for a normal non-smoker, although they were still in the...
Today here on the Community News we wanted to share with you the final volume of our series ‘My journey through breast cancer in verse and word’ by Amanda-Jayne. Amanda-Jayne was diagnosed with Breast cancer in June 2019 and used poetry and journaling to diarise her experience throughout. Amanda-Jayne has very kindly sent through her poetry and writing to us here and we are pleased to have brought you this series detailing her experience. In her writing Amanda-Jayne talks openly about...
Monday was a bad day.. Nothing went well, cried loads.
I have my blood test, CT scan and MRI this week, hopefully once these happen I will be able to move onto the next stage and the next bubble.
im taking each day as it comes and trying to enjoy the little things as I’m starting to see those as the big things.. it’s so true when they say ‘life happens when you are busy making plans’
Thursday has the worse day since I got my diagnosis, I have this anger at myself for getting...
My journey from diagnosis to recovery following a full time working mum with 4 children and her own start up business..
The Three C’s
After the tests and the biopsies
I have been told I have the big C
Now I have three C’s in my life
Cancer Corona and Chemotherapy
Each visit to oncologist becomes fraught with fear
As I have to mask up and be careful when there
The routine is getting familiar now
Back home through the door strip off and in to the shower
Can’t give Corona any power
It could be eighteen weeks in isolation at best
This is going to be a huge test
Because we don’t know how long Corona...
There are certain events in life that can really make you question the meaning of it all. Why do we fight so hard to go swimming in one direction just to have the tide change and drop us in waters we never planned for, miles away from where we thought we were going.
The fear caused by uncertainty and the unknown can be powerful and paralysing, but that’s not necessarily the end of the story.
“ in my times of uncertainty this community has been a saving grace for me. I want you to know...
During this time of crisis, it may be hard to see the positives, but one thing I’ve noticed is that more people seem to be enjoying home cooking.
Whether you’re lucky enough to be sitting down more regularly as a family together; virtually sharing a special meal with a loved one via video chat; or simply chatting with other members on the Community, food is something that unites us all.
Community members have been chatting in this thread about baking, whether a distraction or necessity...
I have been trying for some time to get this blog up to date but have had technical problems.
At my check in May 2019 three tiny tumours were found and were zapped there and then with a diathermy tool (basically burned away). At the next cystoscopy in August I was clear and signed off for 6 months. At the end of February again there were three tiny tumours which were dealt with by diathermy. My next cystoscopy will be at the end of May this year (subject to coronavirus - I haven't yet enquired if...
