Blogs

Latest blog updates

• Living with Desdemona

  Desdemona 14 minutes ago
• Community News

  This is a place where you can read about everything that's happening on Macmillan's Community. From guest stories, to sharing awareness months, here is where you'll hear about all of the latest from Macmillan's Community.

  Lizzie - Online Community Team 2 hours ago
• To Hop-on or Hop-off is the question?

  Mr U 6 hours ago
• Multiple Myeloma

  Tess123 5 days ago
• WJ grade 3 Astrocytoma cdkn 2a/b HD

  W J 8 days ago
• Mumofcancer

  Mumofcancer 12 days ago
• One Step At A Time

  Phild26 14 days ago
• Cycle 19 and not working anymore

  Emotions 14 days ago
• Warm your teaspoon

  Mrs of husband with bowel cancer - T3 N1 - chemo to be followed by radio then anterior bowel - depending what they find. Oxaliplatin and Capecitabine being the prescribed drugs. `

  Sierraoscar 15 days ago
• Pete's cancer blog

  Peterb 20 days ago

Latest blog posts

• Active surveillance a journey to where…

  The waiting game…PSA monitoring anxiety.

  Data first, drama second.  PSA monitoring on active surveillance is a bit like running. You know your PB, you’re desperate to beat it, can it be lower this time. The expectation creates anxiety. Having control of the data helps. I&rsq...

  JohnPM 7 months ago
• Active surveillance a journey to where…

  The post MDT appointment …a grey area

  The longest wait comes to an end. Three weeks and two days after the biopsy. And three days before Christmas I get the biopsy results.  PSA 13.2 PSAD 0.33 T2c 3+4=7 with PNI pattern 4 10% longest length 14mm. 10 out of 15 cores p...

  JohnPM 7 months ago
• Active surveillance a journey to where…

  The biopsy…a training opportunity

  The MRI went well. An out of hours late evening appointment just 4 days after the referral letter was sent. Neither nurse could get the cannula in. I gave them five attempts then in the machine for a bimetric scan. Just 10 hours later a phone ca...

  JohnPM 7 months ago
• Active surveillance a journey to where…

  The phone call…was anyone going to tell me?

  I called the receptionist. As usual asking barrier questions to my queries. I then asked for the practice manager to call me back and explain why the surgery was not following NICE guidelines with regards to cancer pathways. That cut through the chat...

  JohnPM 7 months ago
• Active surveillance a journey to where…

  The results…well from AI

  Blood test done. Results came back, but not to my usual GP,  sent a text: “Cholesterol high, I’ve booked you in for a repeat test in two weeks.” Lots of information about how to reduce it. Nothing else mentioned. Not surprised ...

  JohnPM 7 months ago
• Active surveillance a journey to where…

  The journey begins…Family visit

  Hello everyone, This is the start of my blog sharing my active surveillance journey with localised 3+4=7 prostate cancer (CPG 3).  It all kicked off in the most ordinary way. Family came down to Cornwall for a two-week stay. After about 10 days ...

  JohnPM 7 months ago
• Distracting myself, hopefully!

  Trying to be positive

  I'm trying to be positive, but I've been really struggling to deal with how the surgery has changed my life.  I had a grumble about my hearing in my last post so we won't go there again.  Next I still can't speak.&...

  Margaret853 7 months ago
• 

  To Hop-on or Hop-off is the question?

  Post 273: That made me think…

  Post 273: That made me think… Often I’m trawling through the notifications from the prostate forum. Sometimes I have time, sometimes I make time, sometimes I’m moved to reply and sometimes I can’t. Today I couldn’t re...

  Mr U 7 months ago
• 

  To Hop-on or Hop-off is the question?

  Post 272: This is truly bad on a good day.

  Post 272: This is truly bad on a good day. The last few days I’ve not had much to say, so I’ve preferred to sketch something down in the form of poetry. This is more for me — to rest my fingers and mind and entertain myself with ri...

  Mr U 7 months ago
• Still enjoying life with cancer

  Radiotherapy round 3 ahoy!

  Having been a bit apprehensive about starting radiotherapy this week I seem to have got through the first two sessions without a problem. I know that the doses will accumulate over the next 3 sessions on my adrenal gland and that my symptoms may chan...

  Slartybartfast 7 months ago