what now

  • did it change

    FormerMember
    FormerMember

    we saw the consutant yesterday and they said that the tumour had not grown or decreased in size. so it is good news or is it bad news im not sure

  • what fun

    FormerMember
    FormerMember

    Well we have been back from euro disney a week and we are just about recovered.

    We meet lil man on sunday and he ran up to me with a massive grin on his face. That was the most amazing thing ever. He had a fansatic time loved every  minute of it. He got lots of pictures with the charaters and signuaters. 

     The hotel they stayed in was wicked. If it was raining the chararters would come in and dance on the stairs and take…

  • euro disney

    FormerMember
    FormerMember

    lil man went to disney land in paris today for six days. His dad and i will be joining  him on saturday and i cant wait.

    This is  positive thing to think about. I cant wait to go and have some fun. Life has been so unreal and out of control these last couple of months. This is going to be an experience for all of us.

    I am slighty nervous about going because lil man has a hikman line in and i dont know if the rides will…

  • why do people not understand

    FormerMember
    FormerMember

    Today i had a meeting with HR and my matron AND  all i heared was blah blah blah blah.

    They dont understand how stressful it can be trying to constrate at work when you know someone is dying.

    Yes im going to have more mingraines and yes im going to have to take time off work with them.

      They really dont understand how i feel and i try to keep them informed about lil mans condition but they dont want to know. The thing…

  • good mood

    FormerMember
    FormerMember

    im in such a positive mood today.  hoping i can rub it off to my friends and family.

    lil man went back to school yesterday and he loved.  He is still on his chemo and is doing extremely well with this block.

    He is so amazing. To look at him you would think he is a normal 8 year old.  But if you pay attention to detail you can tell he is not well.

    The doctors are amazed with how well he is doing they have increased his time…