what now

  • ummmm

    FormerMember
    FormerMember

    Chemo is not nice this time round.

     I  think because last time he was having radio and steriods it did not hit him at all. this time it is making him really sick and not feeling to well.

    I fell so useless.  Now  i know how simba feels when im not well.

    other than being sick lil man is not doing to bad. he is still not walking to far but he tries to walk a little bit more every day.  we cant ask for more really.

    he is…

  • not good

    FormerMember
    FormerMember

    we were told yesturday that we will have less than a year with lil man if we are lucky.

    NOW i know what the doctors say is only a guess but it just brings it real. They told us this news yesturday. Because they have had 4 child roughly the same age as lil man with the same type of tumor pass away within a year of the doctors finding the tumors.

    I am finding it very hard to stay positive at the moment.

     I know they…

  • WOOOOOW

    FormerMember
    FormerMember

    I cant believe i am writing this but here goes.

    On monday we got the results of the mri scan.

    Well the news we got, well lets just say it was the best news we could of hoped for and more.

    The results showed that the brain tumor has redcued significantly in size. It has come of the spine which is brilliant news. The doctors have said 1 year of chemo, mri's every three months. but it all good at the moment.

    I cant…

  • sleep is a good thing

    FormerMember
    FormerMember

    I have managed to get some sleep last night.. WOOW. I  finished work yesturday and fell asleep by chance. today is a good day. Dont fell like the world is on my shoulders. Talked to a special person yesturday and that was very helpful, made me releaise a few things that need to be done. Life some times just gets on top of me and i cant take it but i say to myself to take life witha pinch of salt and thats what i did. sleep…

  • washing machine HEAD

    FormerMember
    FormerMember

    My brain is about to explode. i have to many things to think about at the moment and its all getting on top of me. i moved house 3/7/10, that was extremely hard work. trying to get things sorted out so i can find everything again is a nightmare.

    What does not help is i dont feel well and cant take any more time off work. so going into work not feeling 100% is hard enough but i work in a hospital so its enen harder to…