The pokemon

  • End of treatment

    FormerMember
    FormerMember
    I made it through 27 fractions of radiotherapy before my hand got so bad they had to stop. It's not the full 60 Gy we were aiming for, but 54 is not at all bad. My lovely oncologist said that most people don't get past 40 Gy with this sort of electron radiotherapy so my 54 shows that the bio oil and aloe vera I was using are good stuff, she's even going to recommend bio oil to other patients. I asked…
  • Microwaved Pokemon

    FormerMember
    FormerMember

    I'm a quarter of the way through my radiotherapy now - 8 sessions down.

    Radiotherapy treatment is mostly faffing around with machines. I get to lay on a bed with my arm above my head, hand slotted into the mould they made on my first visit. Once I'm all lined up they dim the lights and the serious faffing starts. There's a green laser sight which they centre on my tattoo and then they have to move the bed…

  • Today

    FormerMember
    FormerMember

    The oncology appointment was pretty intense. I was there for near enough two hours and very little of that was waiting.

    First they took blood samples and weighed me. Then I got to talk to my oncologist who asked me to tell her everything that had happened so far and then explained what she would be doing next. She also recommended http://www.sarcoma.org.uk/ as a useful website to look at. It's one I knew existed…

  • Appointments

    FormerMember
    FormerMember

    Well I managed two whole days of approximately normal life.  Then I got home from work today to find my oncology appointment is this Thursday at 9am.  I hope work are ok with the short notice.

    I don't  know why it feels like such a bad thing.  I knew it was coming, I didn't want to wait any longer than necessary, but it feels like my little bit of normal is being snatched away too soon.

    I'm not entirely sure how…

  • Normality

    FormerMember
    FormerMember

    Well today is my last day of being signed off work following the surgery. 

    I can't quite decide how I feel about that, in some ways I really want to get back to work but in others it's sort of scary and I'm not sure how I am going to cope.

    I don't suppose it matters too much.  I'll turn up and do what I can and I'll sort of cope because there isn't really any choice but to.  It's only going…