The start of my breast cancer journey

  • Cycle 2

    Another eventful appointment, it had been decided to run my Docetaxel over 2 hours rather than 1 due to my reaction on my first cycle, unfortunately this didn’t work and I reacted again it just took a little longer to happen, the staff were fan...
  • Ready for 2nd cycle tomorrow

    Cycle 2 tomorrow, I’ve started my steroids and I know I’ll be buzzing the weekend due to them and I have also accepted that next week I’m going to lots of chilling. However, this week I’ve felt really good, tired, but good. I&...
  • Week 3 of my cycle

    So I’m into the final week of my first 3 weekly cycle. I generally feel good, my mouth is much better, my taste has improved and I’ve managed to do a workout session and some weights. The biggest problem is that I’m so so tired, I d...
  • Another lovely present

    One of my work colleague and friend bought me this beautiful gown, she said she had used one similar when she was going through treatment and found it really useful when she had her radiotherapy. I used it when I went for my scan and I will continue ...
  • Day 9th to day 14 post (1st) chemo update

    Day 9, Saturday. Despite take Zopiclone last night I was still wide awake at 3.30 and got up at 5.30. Apparently last night within 10 minutes of taking my Zopiclone I was telling G to turn the pomegranates on the airier , I was drinking my cola...
  • Day 8 post (1st) chemo cycle

    Day 8, Friday. After another restless night I woke to find not only is my tongue swollen my my lips are too, I’m not concerned is a delayed anaphylaxis at all but do feel I need to see the nurse specialist in the chemo unit. The tongue pain is ...
  • Day 6 and 7 post (1st cycle) chemo

    Day 6, Wednesday. I had a really restless night but dozed in between, paracetamol at 4am. My mouth/tongue  is getting worse and my taste has changed, everything I eat or drink tastes either disgusting or of cardboard. On the plus side the bone p...
  • Day 4 and 5 post (1st) treatment

    Day 4, Monday. Here comes that crash  the steroids had led me into a false sense of security. I slept until 3am but dozed until 5.30, I suffered a massive night sweat and another episode of chest pain. I feel really achy today, from the GCSF I ...
  • Post 1st cycle update

    Day 2, Saturday, the day after chemo I felt absolutely fine, I cleaned the bathroom tiles, hovered, done a small workout, moved some bricks from the front to the back and walked to the village shop. Its an odd feeling when I feel so good but I’...
  • Another treat

    My work colleagues and friends put together an amazing hamper and gorgeous card, the hamper contained so many thoughtful items, blanket, slipper, hot water bottle, ginger biscuits, boiled sweets, face masks, hand cream, colouring book and pens, along...
  • First Docetaxel

    My appointment was at 8.30, chemo ordered by 8.45, had IV pre meds whilst waiting for chemo prep to bring up my treatment, it arrived about 9.45 so was up and running fairly quickly. Unfortunatly my worst fear happened and I reacted within minutes, I...
  • 1st Chemo day

    Here I am on my first chemo day, well not strictly true as chemo is tomorrow so first targeted therapy day. I had another really bad night, sleeping from 10.30 until 12.00 I then saw every hour, I tried reading my kindle until tears were streaming do...
  • New patient review

    I had my new patient review a day ahead of chemo, it’s a very strange feeling becoming a patient in the department I work in, my work colleagues and friends were all super lovely as they are to all our patients and the discussion with the speci...
  • First Oncologist appointment and what on earth is this under my boob

    The very long awaited oncologist appointment was on Tuesday 11th, she was a lovely lady, she asked if I’m someone who likes to know everything….yes please. It turns out my invasive lobular BC is also one of the fairly rare subtypes, Pleo...
  • A full week of appointments

    On Monday I had my heart echo and ECG ….. results were all good Tuesday was the oncologist….I’ll update that appointment on a separate post Wednesday (today) was bloods, new patient discussion at Chemo centre and wig referral tele...
  • Amazing forever friends

    Our friends are so amazing,….I’ve received my little lifts box which contains the most amazing selection of items given at such a traumatic and stressful time, it most certainly is a “little lift” and so appreciated. A work f...
  • Moving forward…..at last

    my BC nurse called on Wednesday to say I had been discussed at MDT and I would be seeing the oncologist on 11th, she told me I would be having chemo but she didn’t know which one and said the oncologist would give me all that information.It&rsq...
  • Absolutely gutted

    I spoke to my breast care nurse yesterday to ask about today’s appointment with the oncologist only to be told I didn’t go to MDT because there was no one available to prepare the MDT due to the extended Christmas break! I was devastated,...
  • Colonoscopy

    On 23rd December I had my colonoscopy, the pre procedure preparation diet was interesting, the procedure itself was painful in parts because apparently I have a “floppy bowel” so it took a bit of persuasion to get it around my bowels and ...
  • My first really bad day

    Tuesday, I was up at silly o’clock again, just cannot stay asleep, so I done a home workout, the problem is this cancer is on my mind every single waking minute……you all know this, it’s awful just knawing away in our head&he...
  • A date for colonoscopy and 2nd breast ultrasound

    On Monday I visited endoscopy and my referral was still not there, the guy was so helpful and told me if they give it to me to take it straight spdown and he will get an appointment sorted. I called my breast care nurse and explained to her that I wa...
  • Nothing is going to plan

    I had another really bad night so I got up at 4am and started putting the Christmas trimmings up before I headed to the gym for 5.30 Today I called the endoscopy unit, explained the situation including the fact that I’m eager to start chemo but...
  • Results day…..at last…Invasive Lobular BC….but what’s lurking in my bowel and behind my nipples !

    It’s been a long long week, my sleep is really bad at the moment so I was up at 4.15. At last I get my outstanding biopsy results and my PET and MRI result, an 11.am appointment so not to long to wait. I wasn’t called in until 12 noon, a ...
  • MRI and the gym

    We watched a program on planner last night about a babies who had been shaken violently by their parents and permanently disabled, a seven week old is unable to do anything! Nothing for the rest of his life, even has to be tube fed. Then the news rep...
  • PET scan and telling mum

    It’s a good job I’m not sleeping well at the moment, we had to be an hour away for 8am it was snowing quite heavily and very pretty, mine you I would have been poohing my pants had I been driving . When I arrived they told me they were r...