The start of my breast cancer journey

  • Day 8 post (1st) chemo cycle

    Day 8, Friday. After another restless night I woke to find not only is my tongue swollen my my lips are too, I’m not concerned is a delayed anaphylaxis at all but do feel I need to see the nurse specialist in the chemo unit. The tongue pain is ...
  • Day 6 and 7 post (1st cycle) chemo

    Day 6, Wednesday. I had a really restless night but dozed in between, paracetamol at 4am. My mouth/tongue  is getting worse and my taste has changed, everything I eat or drink tastes either disgusting or of cardboard. On the plus side the bone p...
  • Day 4 and 5 post (1st) treatment

    Day 4, Monday. Here comes that crash  the steroids had led me into a false sense of security. I slept until 3am but dozed until 5.30, I suffered a massive night sweat and another episode of chest pain. I feel really achy today, from the GCSF I ...
  • Post 1st cycle update

    Day 2, Saturday, the day after chemo I felt absolutely fine, I cleaned the bathroom tiles, hovered, done a small workout, moved some bricks from the front to the back and walked to the village shop. Its an odd feeling when I feel so good but I’...
  • Another treat

    My work colleagues and friends put together an amazing hamper and gorgeous card, the hamper contained so many thoughtful items, blanket, slipper, hot water bottle, ginger biscuits, boiled sweets, face masks, hand cream, colouring book and pens, along...
  • First Docetaxel

    My appointment was at 8.30, chemo ordered by 8.45, had IV pre meds whilst waiting for chemo prep to bring up my treatment, it arrived about 9.45 so was up and running fairly quickly. Unfortunatly my worst fear happened and I reacted within minutes, I...
  • 1st Chemo day

    Here I am on my first chemo day, well not strictly true as chemo is tomorrow so first targeted therapy day. I had another really bad night, sleeping from 10.30 until 12.00 I then saw every hour, I tried reading my kindle until tears were streaming do...
  • New patient review

    I had my new patient review a day ahead of chemo, it’s a very strange feeling becoming a patient in the department I work in, my work colleagues and friends were all super lovely as they are to all our patients and the discussion with the speci...
  • First Oncologist appointment and what on earth is this under my boob

    The very long awaited oncologist appointment was on Tuesday 11th, she was a lovely lady, she asked if I’m someone who likes to know everything….yes please. It turns out my invasive lobular BC is also one of the fairly rare subtypes, Pleo...
  • A full week of appointments

    On Monday I had my heart echo and ECG ….. results were all good Tuesday was the oncologist….I’ll update that appointment on a separate post Wednesday (today) was bloods, new patient discussion at Chemo centre and wig referral tele...
  • Amazing forever friends

    Our friends are so amazing,….I’ve received my little lifts box which contains the most amazing selection of items given at such a traumatic and stressful time, it most certainly is a “little lift” and so appreciated. A work f...
  • Moving forward…..at last

    my BC nurse called on Wednesday to say I had been discussed at MDT and I would be seeing the oncologist on 11th, she told me I would be having chemo but she didn’t know which one and said the oncologist would give me all that information.It&rsq...
  • Absolutely gutted

    I spoke to my breast care nurse yesterday to ask about today’s appointment with the oncologist only to be told I didn’t go to MDT because there was no one available to prepare the MDT due to the extended Christmas break! I was devastated,...
  • Colonoscopy

    On 23rd December I had my colonoscopy, the pre procedure preparation diet was interesting, the procedure itself was painful in parts because apparently I have a “floppy bowel” so it took a bit of persuasion to get it around my bowels and ...
  • My first really bad day

    Tuesday, I was up at silly o’clock again, just cannot stay asleep, so I done a home workout, the problem is this cancer is on my mind every single waking minute……you all know this, it’s awful just knawing away in our head&he...
  • A date for colonoscopy and 2nd breast ultrasound

    On Monday I visited endoscopy and my referral was still not there, the guy was so helpful and told me if they give it to me to take it straight spdown and he will get an appointment sorted. I called my breast care nurse and explained to her that I wa...
  • Nothing is going to plan

    I had another really bad night so I got up at 4am and started putting the Christmas trimmings up before I headed to the gym for 5.30 Today I called the endoscopy unit, explained the situation including the fact that I’m eager to start chemo but...
  • Results day…..at last…Invasive Lobular BC….but what’s lurking in my bowel and behind my nipples !

    It’s been a long long week, my sleep is really bad at the moment so I was up at 4.15. At last I get my outstanding biopsy results and my PET and MRI result, an 11.am appointment so not to long to wait. I wasn’t called in until 12 noon, a ...
  • MRI and the gym

    We watched a program on planner last night about a babies who had been shaken violently by their parents and permanently disabled, a seven week old is unable to do anything! Nothing for the rest of his life, even has to be tube fed. Then the news rep...
  • PET scan and telling mum

    It’s a good job I’m not sleeping well at the moment, we had to be an hour away for 8am it was snowing quite heavily and very pretty, mine you I would have been poohing my pants had I been driving . When I arrived they told me they were r...
  • 2nd surgeon appointment….some results

    Yesterday I had my second appointment with my breast surgeon, biopsies results   The appointment wasn’t until 4.40 and I was so nervous all day I even had a JAck Daniels at about 3pm. There was a lady in the waiting room who had clear...
  • Is it anger or am I’m feeling sorry for myself…serves me right!

    I’m feeling so angry right now but then I question whether I’m just feeling sorry for myself, maybe I deserve this. over the past three and a half years I’ve made so many changes to my lifestyle to better my health, I had a gastric ...
  • My beautiful thoughtful gift

    Today I received an Amazon parcel I couldn’t think what I had ordered, it was a beautiful thoughtful “thinking of you recipe” I’m sure many of you have seen them, a small hessian bag with a bee (you l always be in my thoughts)...
  • COVID , PET scan and MRI

    I have never been so scared of Covid as I am now….when the new variant was found in this country I had a huge meltdown, my biggest fear is that surgeries will be cancelled. I’ve had a letter,  my MRI is on Fri at 8.45am I also recei...
  • Where is my head

    How do I stop thinking about BC every minute of every day? I’m dropping of to sleep pretty quickly but when I wake in the night it’s on my mind, my body is used to being up at 5am for the gym but now by 4am I’m wide awake&helli...