The start of my breast cancer journey

  • Back to work…and the Gym!

    Thursday night I set my alarm….for the gym, it had taken me a long while to get to sleep that night….must have been exited! I went to the gym 5.30am for the first time since January…..all went well, I had to drop some of my weigh...
  • Re-starting treatment and Radiotherapy planning

    On 28th June I had my 5th dose of Phesgo this is the first one without the Docetaxel, I felt no pain and apart from a dead leg for 3 or 4 days I don’t appear to have any side effects. It was lovely to catch up with all my work colleagues and fr...
  • Moving forward with my treatment plan

    Last Tuesday I called the oncologist secretary to ask if she could give me any idea of when I would be seeing the oncologist because my treatment was being delay whilst waiting, she called me back and asked if I could make it that afternoon…&h...
  • 8 weeks post surgery

    Where does time go !!. It’s 8 weeks since my surgery, physical I’m really doing well, I still have a couple of pockets of fluid that I’m waiting to be re-absorbed into my body on the side that had the lymph nodes removed. My scars a...
  • A little bit to add

    I forgot to mention in my last post that the surgeon took 20 lymph nodes and 6 of them were cancerous, albeit inactive tumours 
  • Post surgery results day

    I can’t deny I was quite anxious yesterday morning, it was results day and thankfully a mid morning appointment. We were given such good news…..all the cancer which my surgeon removed was inactive  . I didn’t expect to become...
  • Post surgery….latest update

    So surgery was 3 weeks and day ago. I was Covid positive for 2 weeks !! Unbelievable I noticed on day 10 post - op that my right side “bingo wing” was very wobbly and clearly holding fluid, I also developed a lump under my right armpit wh...
  • 8 days post surgery and still Covid positive

    I can’t believe surgery was a week ago yesterday. My pain is so much better and I haven’t used pain relief for a few days now, it’s constantly there but more of a sharp ache. My drain was removed by the district nurse on day 5 which...
  • 2 days post bilateral mastectomies and right axillary node clearance and now I have Covid!

    Surgery was on Thursday, I was in theatre for almost 5 hours in the end, I was my surgeon’s only patient of the day so I was in theatre before 8.15. I went of to sleep crying, woke up crying then spent 2 hours crying …..then I got ...
  • Breast cancer

    Chemo starts in about 2 weeks. 3 chemo treatments every other week (Epirubicen and Cyclophosphamide) . After that 12 weeks of Paclitaxel, weekly chemo, and zoledronic acid. When I start the Paclitaxel chemo I also get Phesgo treatment every 3 weeks. ...
  • Day before bilateral mastectomy

    I’m still struggling to come to terms with tomorrow’s surgery, it’s a good job I’m an active person because I’ve stayed really busy today just to take my mind away from my anxious thoughts. In a way I’ll be glad wh...
  • It’s all happening so quickly now

    Since my last post I’ve been for a PET scan and the breast surgeon called me 2 days later to tell me my lymph nodes have all shrunk down, I’m so happy about this, with it being lobular BC I didn’t expect much of a response&hell...
  • Week following cycle 4

    With chemo being on the Friday the steroids done their job and got me through the weekend, As expected I hit the floor on Monday, I felt awful and slept most of the day, Tuesday and Wednesday were much the same but I didn’t sleep as much, ...
  • Cycle 4 Docetaxel, Trastuzumab and Pertuzumab (maybe last Docetaxel before surgery)

    Yesterday was potentially my last Docetaxel before surgery, extra pre-meds stopped a reaction thank goodness and all went well, I ate virtually non stop whilst I was having my treatment ♀️I think it’s psychological because I know come Monday I...
  • Results from plastic surgeon MDT regarding reconstruction

    Knowing it was over a week ago my plastic surgeon took me to the MDT meeting I had contacted my BCN last Friday but didn’t hear back so I called again today. BCN did apologise that nobody had got back to me. not the news I wanted to hear at all...
  • PET scan cancelled

    We were on our way to the hospital which is an hour away when they called to say they had made an error and I cannot have the scan until after my next treatment, what a palaver, it’s rebooked for 28th March. 
  • 2nd oncologist appointment

    I saw my oncologist on Tuesday, she really is such a lovely young lady. She’s arranging a PET scan to see if the tumours have responded and to check for spread. The results will determine whether I need 4 or 6 chemotherapy’s before surger...
  • Appointment with plastic surgeon

    My appointment was Wednesday so I wasn’t feel to bright but wasn’t going to miss this ! A really pleasant man but my hopes were dashed. After examining me he declared the same as my breast surgeon…. You have no fat!!!…&...
  • My week following Cycle 3

    The steroid’s got me through last weekend, I was buzzing and busy, I started to feel a little tired come Sunday afternoon though and also started my GCSF injections on Sunday till Thursday. I did notice that my taste started to change by Sunday...
  • Cycle 3

    I have to say I was dreading today, just so scared I was going to react again but I’m very please to say all went well, I had hydrocortisone and Piriton prior to my treatment and really pleased to report that I didn’t react I f...
  • A nice update

    I don’t have anything negative to report, I’m day 17 of cycle 2 and I’m feeling good, my right nostril is still playing me up, it’s not as sore as it was but it’s full of scabs and I had hoped it would clear up before Fr...
  • Feeling better…Cycle 2 day 11

    At last I’m feeling better, my mouth is much less sore, my right nostril is also much less sore and I can taste again which is amazing, I ate last night and enjoyed my food for the first time in 9 days. I have been having soup or cheese and cra...
  • Breast surgeon appointment …..Eeeeeeeek

    I had an appointment with the breast surgeon, I wasn’t sure why because she told me I wouldn’t see her again until surgery, I checked with the breast care nurse who said no you won’t need to go to that one, it would have been s...
  • CHEMO SUCK !!!

    I woke up Monday feeling absolutely rubbish, so so tired, I laid on the sofa sleeping in between waking with my painful mouth, this was definitely different from cycle 1 and it continued until Wednesday with symptoms getting worse, sore mouth, s...
  • Cycle 2

    Another eventful appointment, it had been decided to run my Docetaxel over 2 hours rather than 1 due to my reaction on my first cycle, unfortunately this didn’t work and I reacted again it just took a little longer to happen, the staff were fan...