A Carcanoid Syndrome Carers View

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Just joined this online blog thing!!! I don't really know what i'm doing.

My husband was diagnosed with the Syndrome about 4 years ago. Things have been ticking along fine....3 months ago we were told it may be in his lungs now (he already has it in his gut and liver).  A visit to the local A/E confirmed this....we were also told he has a big tumour on his Aeorta.

For some reason this has hit me very hard....I am terrified and want to run away.  I can't cope with feeling what I'm feeling.

I love him so much..I will always be by his side.  We visit the Oncologist on Monday 6/12/10.  I will find out more then.

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