Sublingual Salivary Gland Cancer- my journey

Today everything seems to have got a little bit worse. My lower gums on the side that wasn't operated on are sore and bleed when I brush my teeth. An ulcer has appeared inside my lip. My jaw has tightened up a little bit. I'm feeling a fed up today. I see the oncologist tomorrow so maybe she can give me some new things to help with all this.

So, I'm 1/3 of the way through now. I'm glad to have the weekend break now. I don't have specific pain as such, but the burnt tongue feeling has increased.

I ate some toast this morning and it was a lot more tricky. Can still just about make out chocolate but most stuff doesn't really have much taste, coke and Pepsi taste awful.

My tongue looks very white but I don't have ulcers yet. I find it stay to…

Today's session took a little bit longer because there was a scan as well today. It just involves the machine rotating round more and a different bit starting at the top ( the scanning bit) I keep meaning to look up and find out what all the terms mean. It sounds like they are talking about soup and ants! Taste definately pretty much gone, which makes eating quite boring- but I'm shovelling it in!

No scans the last two days so treatment has been quite quick. Have been using the Caphopsol about 4 times a day. It comes in two different vials which you mix in together. Then you use half of it around your mouth for a minute then the second half. I've noticed a bit of a croak to my voice today which I'm assuming is part of the journey. Also can't really taste very much tonight, although I can still taste chocolate…

Yesterday was the end of the first week. It was quite quick being zapped. I did feel much more tired last night  - but that could just be general lack of sleep rather than anything related to the RT. I did woke up with a slight croak in my throat today but that wore off.

I had an appointment with my GP yesterday to talk about the possibility of getting the Caphopsol. When she looked it up in her book she said she didn…