Sublingual Salivary Gland Cancer- my journey

  • Radiotherapy - Day 19

    Definately got some longer spells of sleep last night which was good, but it meant each time I woke up I'd missed a drug time by about an hour so things were a bit more uncomfortable, but quick to get back off to sleep again. Thursday I usually see the nurse but today the paper work says some other kind of review too. Planning to go into work for a couple of hours later, so will update later.
  • Radiotherapy - Day 18

    Didn't have too bad a night last night. Still waking up every 3 hours to take my various medicines, and dealing with the dry mouth/ saliva issues but am getting back to sleep very quickly. The Dr had said I would need to increase the oramorph up to 5ml this week, but I'm still getting by on 2.5ml, along with the Paracetomol and voltorol.

    I went into work yesterday, by train, and ended up having to walk back to…

  • Radiotherapy session 16

    The weekend seems to have been a good break, although the skin on my cheek/ neck is still very tingley.

    It was really tough getting the mouth piece in today, and the fit of the mask is quite tight, but I can just about put up with it.

    Saw the registrar rather than the consultant today with the nurse and the dietician. I still weigh the same which really surprised me when I think about how much rubbish I was eating before…

  • Radiotherapy - into week 4

    Well last week I couldnt see myself making it into week 4 but I am more mentally prepared for it. I still have a mouth full of sores and ulcers, and the saliva has definately thickened up and become cloudy. I have a complicated drug taking routine which sees me alternating between paracetamol and diflofenac every 3.2 hours, with a 2 to 3 ml of oramorph every 4 hours. It does allow me to get some sleep but I still wake…

  • Half way

    I've been a bit quiet this week because it's been a tough week. For some reason all my side effects have escalated quite rapidly this week. I've been really struggling with managing the pain, particularly at night. I've got a lot more ulcers, particularly on my tongue and side of mouth. Eating is pretty much out the window now, I'm on Ensure drinks pretty much tall the time. I don't mind them. My drugs now are paracetamol…