Sublingual Salivary Gland Cancer- my journey

I've been using carecalendar.org to try and co-ordinate my visitors. It's free for individuals, and you can make a donation if you want to. It's a good way to try and co ordinate friends, This is what their website says.....

"What is CareCalendar? CareCalendar is a web based system to organize meals and other help for families during a time of illness or life changing event, such as the birth of a baby or…

Just can't seem to sleep. Woke up this morning, maybe got 3 hours. Very restless last night, spent time trying to clean my scars but feels so weird touching the neck one, but a bit of progress. Maybe get more staples moved today? I was thinking about in the night what stuff have I brought in that's helped and I think my saving grace has been my dry shampoo. Don't feel anywhere near brave enough to try and wash…

Well, I feel in a totally different place now. Days 3-4 were prob worst low. The nose feeding gave me terrible stomach ache, couldn't sleep, then on Monday night a slight sickness episode removed the tube! So they allowed me to go onto food Tuesday ( day 6) a day early. Watery soup has never tasted so good!!! Today I think I'm disconnected from everything. Doppler came out today And blood flow has been checked…

So I had my op on Wednesday. Think it took about 9 hours, but apparently it went well, and all that was removed looked good. Spent first night in recovery which was noisy, but up on Gray Ward now. The team has just been to visit and they are going to get a few more tubes out and then get me in a chair apparently. Pain not too bad, swelling in mouth uncomfortable but bearable.

My journey started in Nov with a trip to the dentist to enquire about a lump in the floor of my mouth that had been there about 4 years. I did once visit a walk in clinic but I never followed up on that appointment. I visited my dentist in Oct 2013 because the lump ( about the size of an almond) in the floor of my mouth was feeling sore. It has done this on and off over the past 4 years and usually I just put bongella…