i haven't been on here for a while partly because i'm not sure if i belong. i've been told the cancer has been removed but i'm not officially in remission , kind of in limbo. i had the results of my ct last week and it came back all clear , but because i am allergic to ct contrast they arn't entirely sure so wanted me to have a liver mri (today) and a groin mri ( next week).
first time i've been back to oncology for a while and i was pleased to see a newly formed macmillian helpdesk . this was a little cubicle at the back of the hospital with a very sweet macmillian nurse and wall to wall leaflets. so i asked the nurse if she had leaflets on small cell cervical cancer , they had every other kind of leaflet there, ' no ' she said ' we don't see many people like you' .i wasn't quite sure if she meant small cell patients actually alive and kicking or just small cell cervical in general , anyway it brought a smile to my face that i was so unique. i knew she wouldn't have any leaflets i was just testing the poor woman.
i had my liver mri today which is about an hour long maybe more . hadn't realised how needle phobic i had become until today, this even surprised me as my body is covered in 10 years worth of tattoos , but anyway chemo's put me right off . its not helped that my veins are messed up and won't behave so it took 3 tries before they got the cannula in for mri contrast.
then they showed me in to there brand new sparkly mri machine , lovely piece of equipment which is half the size of the original !!! as if being squeezed into a tube isn't bad enough they have to go and make it smaller. because its smaller you have to have your arms raised above your head which is ok for a 5 minute ct but for a hour long mri is agony . so by the time they had finished i was stuck good and proper my back had bloody seased up . so it very embarrassingly took 2 people to get me of the flipping mri machine . a proper flipping nightmare and i've got it all again next week. i thought i would share with you my uniqueness and my shame at getting stuck
FormerMember
Dear Sam, I've been thinking of you recently, wondering how you are, so was pleased to read your blog. Good luck with the results, I'm sure all will be well. Love and prayers. Linda
Why on earth do they think it's improving technology to make the machine smaller? It sounds like a new form of cancer torture. There was a film once (I think it starred Robin Williams) where he was training young medical students and to bring them to understand the sufferings of their patients he made them undergo all the horrible tests going! It should be standard practice!
Of course you 'belong' here - your main treatment may be over but you are still being monitored (as a lot of us here are too) to check the 'beast' isn't going to raise it's ugly head again.
