can someone help me with the maths

1 minute read time.

well people ( in general family, friends , medical professionals ) are now talking to me like i already have 1 foot in the grave , not a plesant time and doesn't fill me with confidence . everybody seems to have that low , depressed tone to their voice and are suddenly talking to me like i'm 3 . i have a little problem thinking at the momment , probably due to lack of sleep ..or just being thick !

anyway can someone help me with the maths ...when i saw the surgen in the week he reccomends that i have complete removal of bladder , bowel and vagina ...by doing this it will give me a 1 in 5 chance of being cancer free ..but that also gives me an 80% chance the cancer will come back ..or i could have chemo ..i've had chemo twice before , both times it hasn't worked ..but of coarse theres different types to try ..if i have chemo i will have 6 - 12 months at the most ..probably . people as mentioned above , are now back tracking and saying i should maybe go the chemo route ...i don't think the sums add up ....had a visit from a palitive nurse today ..does that already mean i'm circling the drain ( a penny phrase) ?

i feel quite well ... ..just had a phone call from the g.p saying how sorry she was , deep depressed tone etc ...and asking me if i thought surgery was really worth it if the odds are so small ..what do you guys think ...?

Anonymous
  • FormerMember
    FormerMember

    hi hun - been offline for a while just caught up on ur last 2 blogs .......... ive just said a few choice words

    ...... but cant print them here !!!!

    wish i could say i was good at maths ....but at the end of the day ..... even 1% ....someone has to be the one!

    oh yeah and sammi .......next time peeps talk to you in a weird way ....tell them to talk to you propper-like

    love n hugs n buckets of cyber-strength

    xNx

  • FormerMember
    FormerMember

    sammi its your choice but if it was my choice and i felt strong enough i would have op someone has to be the 1 in 5 and hopefully it will be you big hugs sandra xxxx

  • FormerMember
    FormerMember

    Like everyone here has said Sammi you must do what you think is best for you.You have two choices, operation or more chemo, the chemo before hasn.t worked for you, the operation is massive BUT it could be the best way for you.I feel so much for you ,  you have always done your best to stay strong, what ever you decide we are here to give you all the support and more. Wished i had the answer for you, but i have the feeling you have already made your mind up, so you just keep on fighting Sammi its your turn to win.

    LOVE AND LOADS OF HUGS. XXXXX

    Lucylee xxxxxx

  • FormerMember
    FormerMember

    I've just remembered....you say that if you have surgery, you'll be going in on the 29th June. That's the same day I went for my surgery last year where I had a large part of my bowel removed and a radical hysterectomy. That date was lucky for me, and it could be just as lucky for you!!!

    (((((xxxxx)))))

    Angela

  • FormerMember
    FormerMember

    Oh Sammie, what a choice. Not only does this effing disease rip you to pieces but it also f*cks with your head as well. You must be in absolute turmoil. In my own case, I have said and will always say that it comes down not only to life itself but quality of life as well. Ask me if my surgery was worth it and in my dark days of recovery I would have said NO! Ask me today and I will say OK with reservations. Not a resounding YES. I guess what it comes down to is what will your quality of life be after surgery? If the cure is worse than the illness then I would say don't have the treatment. There are a lot of questions you need to ask - what will you be like after radical life changing surgery? And then balance that against what will you be like on chemo? Get it clear in your own head before making the decision. Ask and ask again. It is your decision. No one can make it for you, but we are all behind your decision. I don't think a palliative nurse is an indication that you have been written off - I think it's a bit of belt and braces. Good luck, I really sympathise,

    Love

    Drew

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