In 2013, just when I thought everything seemed to be under control, I was told I had a ‘lesion’ on the left upper lobe of my thyroid. At the time, it was a bit of a shock as I had already been subjected to some radical surgery and wondered if this was just part of the relentless march of metastatic disease. The thyroid gland does in fact get mentioned frequently in NET patient discussions but many of the conver…
6 years ago today Chris and I flew off to Barbados on holiday. Both of us were looking forward to a nice break after a hectic start to 2010. When we got back, we both agreed it was the most relaxing holiday we had ever been on. It was heaven.
However, whilst I was lying on a sunbed soaking up the Caribbean sun drinking ‘pina coladas’, Neuroendocrine Tumours were growing in my small intestine, spreading into…
When my diagnosing specialist suggested I had Neuroendocrine Cancer, he also told me not to go online whilst we awaited the results of the liver biopsy. I completely ignored that and went online! I very quickly discovered why he said that because the Neuroendocrine Cancer information online in 2010 was indeed scary, despite me being a very experienced user of computers and the internet; and despite me being to some extent…
2 years ago today, Chris and I were half way along the 84-mile route of Hadrian's Wall in Northern England. Some people saw this is a charity walk and a chance to make some money for a good cause. However, it was MUCH MORE than that. Much much more.
A few months before this trek, I had come to a crossroads and I was unsure which direction to go. That anguish and a thousand other things were contributing to a degradation…
Most people with an incurable Cancer will go through both good and bad periods. I quite liked a quote by fellow patient Karen who described that as the 'ebb and flow' of living with cancer and said the flow would always return at some point. When I wrote my blog "Living with Neuroendocrine Cancer - it takes guts", that wasn't me being one of those trendy bloggers saying the sort of things people want…
