I was extremely disappointed to learn of the decision to remove PRRT (Lutetium or Yttrium) from the Cancer Drugs Fund (CDF) as reported by the NET Patient Foundation. You can read the detail of the decision here: CDF Statement. PRRT has regularly been described by NET specialists and patients as the "magic bullet" due to its potential to shrink and potentially kill tumours.
This is the second Neuroendocrine Cancer…
My two most popular posts to date are Nutrition Blogs 1 and 2 so I guess this is a topic you guys like? Lucky for me I’m pushing at an open door as nutritional issues are one of the biggest challenges affecting most Neuroendocrine Cancer patients. It is also a key factor in maintaining a decent quality of life.
When I first indicated this series was under construction, a few people got quite excited anticipating…
This has been submitted as a guest blog by the Community Team. Thanks to Jess for the highlight!
You can read it here: https://community.macmillan.org.uk/blogs/b/community_news/archive/2015/08/11/guest-post-sorry-i-m-not-in-service
I'm sat next to patients waiting on their chemotherapy treatment - the "Chemo Ward" sign above the door gives it away. I'm here for my 28 day cycle injection of Lanreotide which will hopefully keep my Neuroendocrine Tumours at bay. I look all around, the temporary beds and the waiting room are full and all I can see is people who don't look very well.
No matter how many visits I make, I can't help feeling…
Five years ago today I was diagnosed with metastatic Neuroendocrine Cancer. Until recently, I hadn’t thought much about what this actually meant and how (or if) I should mark the occasion. I’ve concluded there doesn’t seem to be a right or wrong way to handle these type of milestones, frequently referred to as ‘Cancerversaries‘. I’ll therefore settle for a blog!
I don’t tend to…
