Neuroendocrine Cancers can sometimes present with one or more vague symptoms which occasionally results in a lengthy diagnostic phase for some. Sure, there can be issues with doctor experience and knowledge that can add to the problem. However, some people do present with multiple and confusing symptoms, some people have comorbidities which can also confuse as they come with similar symptoms and the textbook diagnostics don…
In the past 12 months, I've read about 6 similarly slanted blogs on the subject of cancer metaphors and in particular their use in describing cancer experiences with the words 'fight', 'battle' and other 'military' sounding terms. The authors say that perhaps this is not the best language to use. I just read another yesterday where the author used the term 'violence' to describe these type of metaphors…
The build up to NET Cancer Day on 10 Nov has begun and I can hear the sound of hoofbeats getting louder every day. Is it a horse, is it a zebra etc etc. However, is this old equine medical adage still applicable as an awareness tool for Neuroendocrine Cancer or should we be looking for something more modern, impactful and compelling?
For those unaware, the term 'Zebra' is an American medical slang for arriving at an
…This is a live blog - updated on 28 Sep 15 to include recent output from RADIANT-4 (Everolimus) and NETTER-1 (PRRT Lu-177) trials.
I was extremely disappointed to learn of the decision to remove PRRT (Lutetium or Yttrium) from the Cancer Drugs Fund (CDF) as reported by the NET Patient Foundation. You can read the detail of the decision here: CDF Statement. PRRT has regularly been described by NET specialists and patients…
Every now and then I see a positive story during my travels around the internet. When I saw this one from Kelly in Pennsylvania, I had to share. If you're feeling a little bit down and need cheering up, dig out this blog and take a read :-)
Kelly wrote:
"I began my Carcinoid journey about 7 years ago, newly married to a wonderful man and his daughter at the age of 43. I was also newly retired (from CPA and also…
