First Post

1 minute read time.

I don't know why I've decided to join. I am not sure if writing on here will help me in the slightest. But since finding out that mum has terminal cancer there seems to be schism between me and the rest of the world - who just don't get it. 

And why would they? Watching the person that you love the most, suffer, lose hope and confront their own mortality - while you wait with them, helpless is not a place where anyone would want to be.

There's a surreal feeling of loss - one were you the know that person in front of you is mother - but she no longer looks, sounds or acts like your mother. Time goes really fast and really slowly both at the same time - quality time to spend with her is running out and yet something you did two days ago feels like a lifetime away. The guilt of not being with her every moment of every day - because you can see your friends and go out anytime in the future but you won't see her again - but at the same time feeling guilty about wanting your life back.

I am not sure if anyone gets the above - I suppose dealing with and having a loved one with cancer is personal and different for everyone but I thought some of this might resonate on here. 

My mum currently has lost the taste in her mouth and was saying to me yesterday that if only she could find some kind of food that would taste good in her mouth she would be happy.  If anyone has any suggestions it would be welcomed gratefully. 

Lim x

Anonymous
  • FormerMember
    FormerMember

    Hi Lim

    There are no words that I can say that can take any of what you are feeling away, but I will say cherish every moment you have with your Mum and don't ever feel guilty about wanting your life back. Your Mum knows you well and loves you and will understand that sometimes you have to be selfish. Take each day as it comes, enjoy every moment and try to laugh at something every time you are together.

    I'm sending you a massive hug and lots of love. Try to keep smiling and try to keep your mum smiling too :) xxx

  • FormerMember
    FormerMember

    it all sounds natural to me... I have cancer and my mum died of it, so I sort of get it from both angles...

    You can spend every minute of time with your mum but it doesn't actually do either of you any good. You need some time to yourself too and to keep your other life going and it is exhausting emotionally looking after your mum and caring so you need some time to yourself. 

     I would hate it if my partner or son felt gulity for being with their friends or wanting a break. It was actually nice for me to have a bit to myself too sometimes when I was having treatment...

    It is emotionally very hard and I think you will find support here. there are lots of carers and daughters of mums on here going through the same thing as you and it does help to write and to get out those feelings you can't share with your family..

    as to the taste: pineapple- fresh chunks were great for me when my taste went. I used to get my partner to get me ready made tubs of fruit salad or pineapple ready chopped that i could keep in the fridge and just have the odd chunk every now and then when I felt like it. Nothing else really did it taste wise for me.

    I wish you well and have a look at the carers and relatives type groups...

    Little My x

    ps I just realised that for some reason I assumed you were a woman.. if you are not.. change daughter to son!

  • FormerMember
    FormerMember

    Hi Lim, trust me you will be glad you joined, even though you are not the person with cancer you still go through the wringer seeing those you love in pain and then you feel helpless because you can't help them by taking the pain away. The initial shock of the diagnosis is one hurdle and there will be plenty more to jump I'm sure. You are not on your own when you feel gulity, I do it most days it's just as you said "you want your old life back" I do too, but the way I have to look at this time now is this is another new chapter in our life. Keep strong, keep looking at the site you WILL find some answers to your questions it may not be the answers you want to hear but at least you will know what to expect.

    Earth Angel.xxx

  • FormerMember
    FormerMember

    Hi Lim,Welcome to the site no one wants to join, but here you will find help and support better than anywhere else on the internet.

    I know exactly how you feel having nursed my wife and it is emotionally draining. There is no need to feel guilty about having time out because this will help you recharge your batteries so that you will have a better time when you are with Mum.

    There are many people on here who are in the same boat as you and they will give you advice and support to enable you to do the best for Mum.

    Good luck on this journey and may you make many happy memories,

    Big Hugs,

    Colin xxx

  • FormerMember
    FormerMember

    Hi Lim. Welcome to the site. I know how you are feeling and also about the the "no one else gets it feeling" too - huge huge hugs. My mum had breast cancer (she died just over 2 years ago) and I wish I had come on here at that time - there are so many supportive people here who do understand, who do "get it" and who can listen, advise and if necessary let you blow off some steam. My mum found that strong smoked bacon or the sharpest cheddar possible could *just about* register for taste.

    Try and stay strong and enjoy the time you have with your mum. Never feel guilty about making time for yourself - I can't stress that enough, it helps you get through this dreadful time.

    Huge hugs

    LouB