In some ways things are better for me now: other family members coming to stay and help out, a night sitter so I can get some rest, an afternoon respite each week, lots of useful equipment around the house. But all this is because my dad is getting slowly worse, every day a little more weak, every day something else he's not able to do. I find it hard that no-one can really say what comes next, I want there to be a pattern…
Just left my dad in hospital for a platelet transfusion. Hope they'll look after him right - hope they realise how weak he is, how restricted the food he can eat is, how scared he is. How hard it is to see someone you love with their spirits so low. At least my mum and i will get a better night's sleep, but who will he talk to at 5 am? I'm glad that when I made the decision to come and care for him in his last few months…
