In some ways things are better for me now: other family members coming to stay and help out, a night sitter so I can get some rest, an afternoon respite each week, lots of useful equipment around the house. But all this is because my dad is getting slowly worse, every day a little more weak, every day something else he's not able to do. I find it hard that no-one can really say what comes next, I want there to be a pattern his last days / weeks will follow so I know what to expect. The other day he had a small stroke, it was very scary for him and for me. It's left him finding it a bit harder to communicate. At least he's not in pain, and that is something to be very thankful for. When no-one else is here it's very quiet.
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