Went in to fill in forms, and got Biopsy results...

1 minute read time.

FormerMember

2 Dec 2011

Evening folks.

I don't know what the stats are for misdiagnosis, but apparently I DON'T have Hodgkins, I have NON Hodgkins (diffuse T cell blah blah).

So I will have 6 - 8 treatments with this new bag, which isn't strictly chemo, it an anti-body that begins with R. And 3 goes at IGEV, with next week being the 2nd. So I get 'R' this Monday, then the following Wed when I'm home (pop in to ward for morning) then again on 21st, then a week off for xmas ... also will have dates set soon for stem cell extraction.

I feel a bit gutted, as I was just getting my head around have HL! Which may sound stupid, but that's how it is ...

I didn't ask if much difference in prognosis, just went off to get the forms filled in ready for going in. I don't need to go in on Sunday night as I don't have a ''bulky mass'' on my neck this time, so can just turn up 9am on Monday.

I've told my mother what the schedule is but not about change in diagnosis coz I can't deal with her high level anxiety. I just had to chill her out anyway as my 13 yr old was trying to sneak off to stay with her girl friend at a boy's house (differing stories let them down) and I tried joking about teens and my mum turned it into a scary event all about boys and men planning something 'dreadful'. Fucks sake, teens do this type of thing, ie: sneaking, and pulling a fast one. Boys may indeed try it on, but the way she went on she made it sound like a paedophile ring!

Anyway. My 13 yr old has been delivered to her friend's house where her mum is keeping them in!

And I may open the vodka.

That is all xx

johnr over 12 years ago

Hi the R is for rituximab it attacks the cancer cells and weakens them so that the chemo has a better chance of kicking butt, when you are first given it you get it slowly to see if you react to it, don't be suprised if you do as many of us have and it just means you get it slower.

Not many T cell users so you may also want to post here for advice and support as the were a couple who post here

http://www.cancerforums.net/forums/16-Lymphoma-Hodgkin-s-and-Non-Hodgkin-s-Lymphoma-Forum

john
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FormerMember over 12 years ago

Hi John!

Oh thank you! Really very sweet of you to offer that advice and I just left you a reply over on NHL league :)

xx
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FormerMember over 12 years ago

Hi Ems,

Good luck for next week, I hope it goes well. It's probably only fair to warn the doctors that Hilary and LM are flying in on their broomstick and they had better watch out.

I'm looking around for a magic carpet to help with the flying bedstead (wasn't that some sort of aeroplane? But then you are too young to remember that).

Look after yourself, eat plenty of choklit and give old crabby a thrashing,

Love,

Odin xxxxx
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FormerMember over 12 years ago

Hello my favourite Welshman!

I think I won't warn them and just see how they cope with surprises haha!

Bedknobs and Broomsticks? I am sure LM or Hils can make a dirty joke out of that :)

Mr Lumpy is going to get well and truly thrashed and I'll tell him Odin is sending his serpents after him too!!

Thank you :))

Love and Cwtchs xxxxxxx
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Cruton over 12 years ago

Hi Ems

I think everyone has said it all I just want to add my support.

Good Luck for next week and the coming weeks. I would not want to be one of those Doctors Hils and LM along with you scary they well deserve a thrashing with the broom stick balloons and bags of shite and god help them when the serpents arrive.

Mr Crab should also be quaking in his boots drugs and an army of friends are coming to get him.

Big Hugs

Cruton xxxx
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