Went in to fill in forms, and got Biopsy results...

1 minute read time.

FormerMember

2 Dec 2011

Evening folks.

I don't know what the stats are for misdiagnosis, but apparently I DON'T have Hodgkins, I have NON Hodgkins (diffuse T cell blah blah).

So I will have 6 - 8 treatments with this new bag, which isn't strictly chemo, it an anti-body that begins with R. And 3 goes at IGEV, with next week being the 2nd. So I get 'R' this Monday, then the following Wed when I'm home (pop in to ward for morning) then again on 21st, then a week off for xmas ... also will have dates set soon for stem cell extraction.

I feel a bit gutted, as I was just getting my head around have HL! Which may sound stupid, but that's how it is ...

I didn't ask if much difference in prognosis, just went off to get the forms filled in ready for going in. I don't need to go in on Sunday night as I don't have a ''bulky mass'' on my neck this time, so can just turn up 9am on Monday.

I've told my mother what the schedule is but not about change in diagnosis coz I can't deal with her high level anxiety. I just had to chill her out anyway as my 13 yr old was trying to sneak off to stay with her girl friend at a boy's house (differing stories let them down) and I tried joking about teens and my mum turned it into a scary event all about boys and men planning something 'dreadful'. Fucks sake, teens do this type of thing, ie: sneaking, and pulling a fast one. Boys may indeed try it on, but the way she went on she made it sound like a paedophile ring!

Anyway. My 13 yr old has been delivered to her friend's house where her mum is keeping them in!

And I may open the vodka.

That is all xx

FormerMember over 12 years ago

Well, yes, that is what has stopped me going completely nuts - the PET scan showed most lumps went, apart from Mr Lumpy. So far, so good.

Mr Lumpy responded very well to IGEV last time I was in. The consultant said ''traditionally, we wouldn't give ABVD for NHL'' and ''traditionally, IGEV isn't that usual for NHL, but having been in discussions for a week with colleagues as your case is unusual (oh lovely, I can't even just manage to ''normally'' have cancer!) and seeing how IGEV was very beneficial and it has lots of similar drugs to what we'd normally give, we'd like to stick to that and give you the R thing as would normally be given'' etc .....

So things aren't changing THAT dramatically, but NHL has about 10 different types whereas HL just is HL, and the types all behave differently, so now it's a bit more tricksy, which explains why when I was admitted last time, they keep listening to chest and prodding tummy area I expect.

But, who fucking knows really? That's the joy of cancer, it moves and slides and does U turns and then behaves then it plays up, and you can't plan anything, just go with the flow, which I've always tried to do but NOW you REALLY have to and it's not fair and I shall stamp my feet a lot!

*grins*

HAHA - brown dungarees and a buttplug it is then!

xxxxxx
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FormerMember over 12 years ago

I had a peek at Cancer Research site - in both cases, HL and NHL women's survival rate is slightly higher than men's, tho I have no idea why? There is a ''survival rate'' (which I know is average etc blah blah) of 20% difference between HL and NHL...

20% makes you a bit wobbly. It makes me more determined too. So generally, I'm determined, wobbly and cross. Brilliant!

xxx
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FormerMember over 12 years ago

Cariad, you are INDOMITABLE!!!

Hove & Lugs,

Annie xxx
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FormerMember over 12 years ago

Cariad, you are INDOMITABLE!!!

Hove & Lugs,

Annie xxx
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FormerMember over 12 years ago

Don't know how I managed two posts for the price of one, but it was worth repeating anyway. xxx
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