Now it's Plan C, actually!

2 minute read time.

Greetings.

Went in today with my 24 hour urine sample and to have bloods taken,a nd to find out what time the new regime would be starting next week. But, last night, my armpit on right hand side felt tender. I thought mayeb it was referred pain from swollen Lumpy, but thought I had better mention it anyway.

So then I had to be prodded and wait for a scan. A surprise bonus today!

Scan = nothing. Hoorah. The sister of the ward said during BEACOPP, one IV had to be given at 7pm and she lived locally, she would come back in to do that for me. How very lovely!!

Came back to work, started eating lunch; phone call - thought it may be the Doc from the Gwent with a biopsy appointment. Noo.

Sandra from my hospital: um, the radiologist assessed the drugs in BEACOPP and said they were very similar to ABVD, therefore, no point having BEACOPP. So.... I am Going In. BUT, not to Cardiff, they are going to do the treatment in Abergavenny. So, go onto ward tomorrow to sign all the paperwork, then get admitted Sunday afternoon/evening, get hooked up to chemo Monday morning, and then have a drip in all day every day Mon-Thurs, then on  Fri get fluids etc via IV, then go home Fri night if all is well, to collapse into my bed for a week or three. Then do same again in December; they will then test me after two of these delightful courses, and see what's what.

Soooooooooo... there we have it. After making some kind of strangled noises I kinda got round to thinking, actually, 5 days 'inside' is less complicated than going in on days 1,2,3,8 etc, and I won't have to try and smile feebly at my 7 year old each evening... I will obviously be fairly feeble when I come home after 5 days, but as I won't have to be taking anything at home, I will be less bleugh in some ways.

Also, as my little one knows where the local hospital is, when she is staying with my mum, she will 'know' where I am and so won't fret so much.

I don't know if I will be able to access macland from my phone, I will try 'enabling' things before I go in, so if you don't hear from me next week, I'm either in druggie coma and/or swearing at my phone :)

xxxxxxxxx

 

Anonymous
  • FormerMember
    FormerMember

    Hi again gang :)

    So, getting my decent PJs washed and ready for tomorrow, and also going to the Cwmdu Eisteddffod this afternoon, where Deri is playing recorder, and reciting a poem!

    So, my regime is IGEV. Which means sometime in Jan/Feb, I'll be getting my stem cells harvested ready for transplant etc which means I will be in Cardiff as an inpatient for a while apparently.

    Well, whatever it takes, eh? Let's get through week A first ...

  • FormerMember
    FormerMember

    Good luck Ems,

    Hope it's not too bad for you and anyway it will be worthwhile.

    Colin xxx

  • FormerMember
    FormerMember

    You have decent pjs??? ooooh I am impressed! (I had to go and buy some for when I went in... )

    There is a lovely bit of garden with picnic benches near the pond and the field of cows if you need fresh air and hills and nice smell... , (out the main door and turn left) It helped me a lot to go out there and if you ask, they will give you a wheelchair to get pushed out there if you can't walk. I had my birthday tea on that bench! Otherwise, hope you get some view of the hills from your ward and that you don't feel toooo rubbish and that you can sleep through it.

    is that Velindre Cardiff or Heath Cardiff?

    anyway, here's to getting through week A eh?

    Sending you all the love in the world my lovely cariad for next week... Send me the odd text if you can't get on here to let us know how you are eh? (not that I will worry about you or anything... ahem...

    Biggest buggest huggest hugs and cwtches to you and cos its a special occasion... zug vugs too.

    Little My xxx

  • FormerMember
    FormerMember

    Hi Cariad,

    I hope they've booked you into the best bed with the best view & near enough to the loo that you can make it there & back with your drip trolley - you won't want an annoying catheter, will you?! So glad the hospital's local, for all your sakes.

    Thinking lots of encouraging thoughts but not allowing my head to slip into tilted mode,

    Love & hugs,

    Annie xxx

  • FormerMember
    FormerMember

    Hope it's Velindre Cariad, the parking's easier.