Living with SCLC

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  • Happy New Year (a bit late!)

    FormerMember
    FormerMember

    Well I've made it to 2011 and had a really good Christmas with all of the family and celebrated the New Year with a minature bottle of Jamesons!!. Had a hangover this morning! Watched the London fireworks on TV - quite impressive.

    Felt quite good since Xmas apart from the cold I can't shift. Started my new chemo this morning so writing this now before side effects kick in (ever the pessimist).

    Radiotherapy on neck…

  • Radiotherapy

    FormerMember
    FormerMember

    Went for MRI Monday morning. Was struggling to get there as shoulder and neck were killing me and even the oramorph wasn’t helping. Anyway got a pretty thorough scan of my spine.

    Went to Clinic yesterday (Wed) and was struggling again and had to ask for somewhere to lie down as that is the only way to get rid of the pain.

    Saw my oncologist who said that there are 2 trapped nerves (between vertebrae) at the top of…

  • Back to square one

    FormerMember
    FormerMember

    Had a scan on Friday. Got results yesterday.

    Went in to clinic expecting good news as I have felt so well. Came out thoroughly depressed.

    Chemo (Cisplatin Etoposide) has stopped working on some of the tumours and others are appearing. Some are still shrinking. It looks like they are going to decide to stop my current chemo and they are considering an alternative chemo called Topotecan. Or, they might give me radiotherapy…

  • Fourth Round

    FormerMember
    FormerMember

    Eventually I got my fourth round. Apparently my bloods still were a bit odd so they phoned the Consultant to check and she decided she wanted to see me before she made a decision.
    So after arriving on the ward at 11a.m. I had to wait until after 6 when the consultant finished her clinic before she could see me. The upshot was I had an elevated kidney enzyme result which they were concerned about but as otherwise I was well…

  • Chemo Postponed

    FormerMember
    FormerMember

    Went for chemo today but it was postponed because my neutrophils are too low.  Aparently even lower today than on Tuesday when I had a pre chemo blood test.  It figures because I haven't felt too good for 4 or 5 days.  Might get it on Sunday.

    Steve

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