Kidney Not

  • Trials and "tribulations" - March 2023

    I haven’t updated for a while.  I think that shows I have moved into another phase.  The treatment is established and a new sense of normality exists.  Treatment has been progressing with no further incident and the primary tumou...
  • One Year On

    On 24th November 2021 my Urology consultant advised me I had metastatic kidney cancer.  A kidney tumour which had spread to the lungs, It couldn’t be cured.  It was however, treatable.  I thought it opportune to mark the event wi...
  • A Poem

    I was inspired by  to write a poem!  And by  to share it.  Thanks guys! A foe is growing inside of meBad cells, multiplyingHitching a ride on my organs and blood streamWearing me downEating into meWeigh...
  • Nivolumab Back on Schedule – Aug 2022

    TL:DR Back on schedule with the nivo 4 weekly    When we started nivo monotherapy we went for a half dose every 2 weeks, instead of the full dose every 4 weeks.  I only had a couple of cycles scheduled due to the uncertainty of how my ...
  • Incessant Thirst

    After I started on ipi/nivo in January I noticed I started drinking copious amounts of tea.  I was relieved there were no immediate side effects, the ones they warn you about; diarrhoea, sickness, itching, so I just thought it was a fu...