I had my first CT scan after I stopped treatment on 17/01/25 and today I popped in to WGH Edinburgh to check-in with M.
It seems I've forgotten all my treatment management tricks. I wore a (new) top with tight fitting sleeves and a long sleeved thermo (I am always cold). I had to wear a gown for the first scan ever. I came off the cycle path a junction too early on the way there, and a junction too late on the way back! I must have never been for 3:15pm either because the trains there didn't fit very well.
Radiology was a bit confused because I am still regarded as being on the trial, even though treatment has stopped. They didn't know where to send the results and my onco chased and was able to get a verbal update on the phone.
The kidney tumour is still 23mm, same as when I stopped treatment. Next scan in 6 months. In year 4 we go to annual scans and (I can't remember when) subsequently we say our goodbyes.
We had a bit of a chat about trials. We don't know what interesting trend my stats followed. But they may use my data in future trials (and I wouldn't know about it) because they frequently need data from "good responders" for research projects.
We took some bloods as a final check and M will give me a phone with the results and post the scan report to me. I am in Scotland so there's no log-in-to-your-own-NHS-records here, yet.
All-in-all nothing much to say.
