Wake me up inside

It’s been a week since I started my new chemo treatment and this week, I’m beyond tired 24/7. There is definitely a difference between ‘tired’ and ‘chronic fatigue’ and no amount of sleep is helping me get through it. It’s made it tough last week at work concentrating and being productive but when sleep doesn’t make me less tired, I might as well try and be awake and doing things. After the nuclear treatment I’ve had the side effects of these tablets are nothing to write home about. I feel like I’ve got constant car sickness but nothing that stops me getting on with my day and I can eat and drink fine. I have a weird tingly feeling in my toes and fingertips all of the time like a mild pins and needles so I’m constantly moisturising to try and stop the skin coming off like it did with the Doxetaxel. My toenails are still dropping off randomly and two of my fingernails have lifted, still effects from the last treatment. My tummy is not happy with anything that I eat and doesn’t stay with me for more than 30 mins after I’ve eaten but again nothing like the extreme sickness or diarrhoea I’ve had with past treatments.

I spoke too soon on my last blog and literally the next day, I had all of my Radiotherapy information and appointments through the post for this week. I have a telephone consultation with an oncologist on Thursday. As if I now have two oncologists to deal with. Then I have an appointment at the hospital on Friday to have a CT scan, be fitted for my board and get my tattoo’s done before my treatment starts the following week. I’m concerned about my seroma and the lack of contact with my breast nurses to help fix it this week. The radiotherapy information stated that treatment couldn’t go ahead if a seroma was there. I’ve called my nurses twice last Thursday and Friday and again this morning. I need to see if I need to get it drained asap this week and then what I can do if I’m having radiotherapy daily and it comes back.

I’m nervous to hear what is going to come with the radiotherapy. It looks like it’s going to run over Christmas and new year. Depending on the strength that I’m going to get, I can’t be around kids or pregnant people which means I won’t be able to see my sister for a month either. I was hoping it was going to be a quiet December with just Chemotherapy to worry about but now that it’s here at least it will be over and done with for the start of next year. Let’s see what this week holds for the next unknown journey.

Anonymous
  • Oh gosh, that all sound like a lot to cope with. Personally I found radiotherapy so much easier than chemo, so I hope this is the ams for you.  Thinking of you x

  • Good morning - Just a quick one as at work. Sounds like a permanent hangover, without the good part first, which isn't great, so well done for getting anything done! When I had radiotherapy I was specifically told that we aren't radioactive or a danger to anyone. Might be worth checking - I don't want to give you false hope - but unless you aren't having the standard radiotherapy then you may be fine to be around everyone. Hope you have a good day! 

  • Ah really  Raised hands This is good to hear from someone else. Did you get any side effects from it? The information I got sent had a list longer than the chemo ones haha I guess they have to list everything that could possibly happen though.

    I hope your getting on OK! Hugging

  • hahaha it is it's not stopping me having my wine though which is the important thing lol 

    This is the best news I've heard! I'm so stressed about christmas if i can't be around my family lol Always thinking the worst Joy I make the mistake of getting on Google which has all the horror stories lol This has put me at ease thank you!

    How did your radiotherapy go? did you have any side effects from it?

  • I read all the horror stories about the radiotherapy as well and was worried. On the first day I was given one steroid cream and one general moisturiser. Used them as directed twice a day. Not sure if just luck or creams but had very little skin reaction, just a little reddening a week after 9 sessions were complete (5 standard and 4 booster). I did get some swelling and the odd stabbing or aching feeling, but lasted less than a couple of minutes each time and slowly decreased in month following end of sessions. I am a bit worried about you and fatigue though, as I know you are getting hit at the moment.. I got toasted on the fatigue front with the radiotherapy, and my concentration was shot. Took about 8 weeks (now) for me to start feeling normal again. I am now finding the work errors that I made when thought I was fine, but was actually brain dead.  I tragically resorted to taking naps - try and take your working hours down if you can. I did some work during chemo but actually took weeks annual leave after the radiotherapy. However, having said that the radio is nothing in comparison to the chemo, you will ace it. Let everyone else organise Christmas then just swan in and eat cake, you have earnt it...!