Nothing more they can do?!

Less than one minute read time.

FormerMember

10 Dec 2010

Dad's been taken off his Tarveca today and has been told there's nothng else they can try. It's just a case of keeping him comfortable now. It's hard for me to hear, but even harder is seeing dad so down. It's like he's starting to give up. I'm not ready to lose him yet. I wish there was something I could do!

It sounds silly but he wants a monitor for home to be able to keep an eye on his oxygen levels. I don't know if such thing exists - but that is what I am concentrating on. I know it sounds so trivial, but thats the only thing his asked for and it gives me something to focus - does that make sense to anyone else?

I say thats the only thing he wants - he did ask for a new set of lungs tonight! If only they could do that for him. xx

Thewife over 13 years ago

Oh Dear what can you say to that..

I`m so sorry, its so difficult watching our loved ones suffer this horrendous disease. Just wanted you to know I was thinking of you, and your family at this difficult time.

K
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FormerMember over 13 years ago

dear vikki

just wanted to send my love and thoughts to you and your family right now. xx

love, claire xx
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FormerMember over 13 years ago

Hi Vickki,

Im so sorry to hear about your Dad. I send you my sympathy support and comfort.

The only thing I can tell you the reason your Dad wants to have an oxygen monitor,and excuse me if I upset you, it is so he can read when the oxygen levels start to fall, that the end COULD be near.

I hope im wrong.

Take care and be safe Big Hugs Love Sarsfield.xx.

P.S. Check with his Nurse first she will know better than me.
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FormerMember over 13 years ago

Hi Vikki,

We haven't spoken before but when i read your blog i felt i really wanted to respond.

Sarsfield is right in a way SATS falling can be an indication of deterioration, If you feel it is the right thing you can get your own SATS machine it is called a Pulse oximeter and it measures oxygen saturation levels in the blood. I can understand why you feel you have to get what your dad has asked for, when my dad was ill i would have got him the world if he had asked for it. You can get one of these machines from

www.pulmolink.co.uk/.../oximeters_list.html for around £35.

I hope your dad stays comfortable for as long as possible, the only other advice i will give you hun is do not waste a moment of the time that you have with your lovely dad, every day is so so precious now, what i wouldn't give for just 5 minutes with my dad now.

Lots of love to you and your family.

Vicki. xxx
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FormerMember over 13 years ago

Hi Vikki,

I too haven't spoke to you before and am all pretty new to this community but hope you don't mind me getting in touch.

Back in April my Mum was diagnosed with Secondary Liver cancer with the doctors only giving her two months! To this day she is still fighting. It is heart breaking to hear a doctor tell you that you're going to lose a person you love but if there is anything I could say to help it's to set targets!

Obviously it is different for everyone but what we try to do is set different targets every few weeks. This gives Mum something to aim towards and look forward to..there are still the times where she's sick and as a family it's as though you are coming face to face with whatever is happening inside of them..but the good times over shadow all of that!

Even small things such as 'I'm going to cook 'his favourite dinner' on Friday. Or 'John is coming round on Saturday'. I don't know how mobile or active your Dad can be but I hope this gives you some strength and hopefully extra happy memories!

x
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