Hevvur's blog

  • I actually have an update.....

    FormerMember
    FormerMember

    Hi everyone, and thanks for the kind messages :)

    I went down to the Christie today, and saw one of the main doctors. (Kim)
    She agreed it's time they intervened, and they have decided I will be having Vinblastine every 2 weeks, until I get accepted on the trial - then I will stop, and have to be off chemo for a month before I start the trial.
    I start next Wednesday.
    I've had this drug before, 8 years ago when I first had…

  • When it seems like the world hates you...

    FormerMember
    FormerMember

    I've now not had any treatment since August.

    I went to London nearly 7 weeks ago for a consultatin with regards to going on a trial, because chemotherapy didn't work, and I can't have anymore radiotherapy, and the hospital down there (Royal Free) had to get funding from my local PCT.

    I've now been waiting all that time, and my PCT only met last week. Just had a call from the Royal Free to say my local PCT…

  • Movement at last?

    FormerMember
    FormerMember

    Yesterday I still hadn't heard anything about my stay in the Royal Free!

    I spoke to the Dr at the hospice, and also my psychologist. The psychologist suggested phoning the lymphoma nurse, rather than my consultants secretary, as i've already been on contact with the secretary and had no luck!

     

    Jane (Lymphoma Nurse) was great. She went to find Adam, the Dr who deals with trials, who instructed someone to e-mail…

  • My feelings are numb...

    FormerMember
    FormerMember

    Well i've had a lovely x-mas. I stayed over at my Mums house, then went up to my new boyfriends house on Xmas afternoon, and spent the night there.

    I've spent every night with him apart from 1 since then, and we've had loads of fun.

    But this bloody cancer is always in the back of my mind. I'm back on pain killers, as the pain is becoming unbarable. I've tried not to complain when i'm around people, as I…

  • Results were today...

    FormerMember
    FormerMember

    Firstly, thanks to those for the lovely comments on my last blog :)

    Now for the results...........

    The tumours in my chest and neck have 'only' grown slightly.
    The one under my arm has grown a little more, and it now 2.5cm.

    I've been waiting for test results to check for a 'cell marker' called CD25. I've found out today that I have this cell, which means I have been accepted onto a trial at…